Did you have your Vitamin D level tested? Vitamin D is not a water-soluable vitamin. If you get too much, it can damage your liver. If you are on a Vitamin D supplement, you should have your level tested every three months. I was very low on D, so I had to take 50,000 units a week for three weeks. Now I take 10,000 units of Mega D-3 twice a week. If you are concerned about your Vitamin D level, please have the blood test done to determine your current level.
Getting my Vitamin D level up to an acceptable level was a good thing but it did not stop the pain of my RA. If you do have RA, just getting your D levels up will not make the RA pain go away, even though it may help a bit. Hope you feel better soon.
I don't know much about the idea that vit d. deficiency could cause joint inflammation, but I do know a bit about vitamin D. When I was first found to be severely deficient. It took months of treatments before my levels began to move upward. I was taking the prescription (ie. vitamin D2) medication weekly. I begin to feel symptom improvement within the first 3-6 months. I was having a lot of achy muscle pain.
Over time I began adding OTC vitamin D (ie D3) but did so with testing and retesting of my levels several times that first year and a half or so. At first it was only 1000 IU at a time. Now I am taking 10,000 IU daily of vitamin D3 and have not experienced the achy pain in a while.
One thing to note is that getting rid of my vitamin D deficiency has not had a measurable impact on my RA. It has helped symptoms which might have been reminiscent of fibromyalgia.
It is very important to attack the disease RA head on. Methotrexate is a standard approach for that.
Hope you begin to feel better soon.
hit something and I'm going to be completely honest with you. Up to 30% of people living with RA are seronegative, that means their blood tests are negative for RA and it can make it really difficult to get a diagnosis. If a rheumatologist, a specialist in rheumatic diseases, has diagnosed you with RA and a doctor. of environmental medicine, who is a specialist in (according to the American Association of Environmental Medicine) "the clinical interaction between humans and their environment" says it's something else, I would lean towards believing the rheumatologist. That's not to say that vitamin D may not play a role - a couple of weeks ago, I wrote a post about the role of vitamin D deficiency in the development of autoimmune diseases and certain cancers - but I would recommend you hedge your bets here.
I understand you don't want to take the medication - none of us do. However, medication protects your joints from damage that can limit your future mobility. It's tempting to go with the theory that maybe you just need more vitamin D, but what if you do have RA? It certainly sounds as if you believe you may very well have it. And this is where hedging your bets comes in. Because I would recommend that you stay on the methotrexate, get your vitamin D levels tested and if you have a deficiency, by all means treat it. It can only improve your general health. it may also have an effect on your pain levels.
it also sounds to me as if you may need some more information about RA, its implications and where treatment can get you so you can feel more comfortable about your diagnosis, be more educated so you can be convinced one way or another about your diagnosis, learn more about managing side effects, etc. Check out our basics of RA area, as well as my post for people who are newly diagnosed - there are links to many articles in our reference area that can give you more information.
Hang in there. And please keep us posted on your progress.
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