I am 60, live alone & have ra for 10 yrs. throughout my whole body. I work full time in sales where I get up & down alot. But in the mornings it is grueling to get dress for work, I find I only have strength to shower on week-ends and cannot stand long enough to cook myself an egg. BUt now I cannot get off my raised toilet seat or double, stacked cushioned sofa without using a table and a towel bar. No matter what could be installed, I am not going to have the strenth to pull myself up much longer. and I have no friends or relatives near by. Currently, I'm taking embrel, methotrexate, plaqunil,predisone, & voltaren.
I'm so sorry you're having such a rough time - RA can be really hard on you and it's not fun when it starts affecting your ability to live alone.
I think your first step should be speaking to your rheumatologist about your experiences, including being very honest about how much your RA is currently impacting your ability to live independently. it sounds to me as if your medication is not adequately suppressing your RA so you and your doctor may need to explore other treatment options. As well, your doctor can give you a referral to a physical therapist and an occupational therapist who may be able to help you with techniques and aids for daily living that may enable you to continue living on your own (e.g., you can get chairs that can raise you from a sitting to an almost standing position, making it easier to get up, there are a number of dressing aids that can make that process easier for you and you may want to consider using a stool in the kitchen so you can cook while sitting). Physical and occupational therapists are experts in helping people live well independently, so it's quite possible that they would have a bunch of suggestions for you. As well, your doctor or especially the occupational and physical therapists would know about resources in the community that can come in to help you, such as home care that may be able to come into your home a couple of times a week to help you shower, do some light meal prep or housekeeping, etc. As well, they would also know about assisted living. However given that you are still capable of working full-time, I think your needs may be met by connecting with various community agencies who provide services for people in your situation.
This was really helpful. I think I first need to sit with my docto & have a serious talk. Thank you for your time.
Glad I could help. let us know how it goes, please?