Saturday, January 12, 2013

Tuesday, September 25, 2012 Mimi asks

Q: Help?

My right shoulder and neck were bothering me more than usual on Friday. I wrote it off to stress/tension. By Sunday, the pain had moved to include my head. It felt like my head was to heavy for my neck. The right side of my head, behind my ear and up a little ways, was tender/painful to the touch and it felt like there was an ice pick in my skull pointing down toward my neck. On Monday, I got out of bed and could not walk straight, I was dizzy, and unsteady - then came the nausea and vomiting. I have RA and am taking Methotrexate and Remicade. Could this weekend's be symptoms of the RA moving into my neck?
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Answers (3)
V, Health Guide
9/26/12 11:58am

Hi, Mimi,

 

Yes, RA could be contributing to your symptoms, but you really need to call your RD....yesterday!  I have had that "head too heavy for my neck" feeling and it is awful.  When my RA meds are working, I don't have much trouble with that anymore. I did not have the nausea with that, though, and your symptoms are concerning.  Please call your doc, Mimi, and let us know how you are doing.  This isn't something you should minimize. 

 

Hugs to you, my friend.

 

V

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9/26/12 9:50pm
Thank you. I always feel like I'm blowing things out of proportion and being whiney. It's really nice to have people to talk to that understand what is going on. Reply
V, Health Guide
9/26/12 11:43pm

I think we all tend to blame everything on RA, and RA does cause a lot of different symptoms, but we still need to let the docs know.  Please let us know what you find out, Mimi.  I am concerned.

 

Blessings,

V

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9/29/12 2:56pm
Thank you V. I spoke with my doctor. She agreed with you that the symptoms are troubling, but since they have gone away, that she will wait until I come in for my regular appointment in a week to do anything further. She said that, however, if they come back that I need to come in or go to the ER immediately. :-) She also said I need to stop being stubborn. Thank you for your guidance. Mimi Reply
V, Health Guide
9/29/12 6:30pm

You, Mimi....stubborn....really???  Wink

 

I think all of us need to be stubborn to some degree.  We just need to learn better when we should call the doc.  We get so used to not feeling well, that we blow things off.  So happy you called your doc!  Please let us know what you find out.  Hope it was just something passing that never comes back, but you need to make sure.

 

Blessings,

V

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10/ 4/12 3:50pm

Hi - I had neck problems (and later shoulder problems) for years before I had RA.  Cervical (neck area of spine) involvement is very common in RA.  But even without BONE trouble, for me the problem was muscle spasms.  I had had PT with success several times over a couple of decades when the tension/pain would get bad.  I've been to chiropractors - for a while that was helpful, until one over-zealous but under-competent guy overdid his routine on me, and since then I stick to physical therapists for the most part.  They were the ones who helped me learn what I myself could do.  

   In spite of all that, one evening I felt I was developing an fearfully increasing collar of spasms around my neck.  I tried to lie down and relax, but it only got worse.  Finally around 11:00 pm my husband took me to the ER, where they gave me a shot of Toradol and some generic Flexeril (cyclobenzaprine).  I have never been without a small supply of cyclobenzaprine ever since.  I don't need it all the time, but I have found it's better to take a small amount if something seems to be developing (like a half-tablet 5 mg) rather than wait until I reach the panic stage. 

    The RA diagnosis happened after all of the above.  My symptom have changed somewhat: for a couple of years, periodically I would get something more like a  nerve spasm going right up into my head.  The cyclo benzaprine would help only a little bit so I eventually went to see a local headache specialist who also facilitates a fibromyalgia group and is herself a chronic pain sufferer.  No warm fuzzies here, she's very cliinical and analytic but the one consultation with her was extremely productive.  She did a very specific exam and could tell me which muscles I was overusing, etc. and gave me some other reading material to take home.  I didn't want to take the time out for a series of appointments at that particular time (my current job...) but that consultation was all I needed to make some changes in the way I do things and I rarely have the problem now.  (Mostly it happens when I slump over the computer screen sloppily and also overdo the caffeine which increases the risk of spasms, etc....)

    (If anyone is curious  or lives in my neck of the woods - northern NYS, her faculty website is here:  http://people.clarkson.edu/~lrussek/)

    Good luck with your troubles!  (I was just given pause on another part of the HealthCentral website where I read that neck/shoulder/arm pain can be caused by lung cancer invading the nerves - spare me from my fears!  But I'm a compulsive reader of medical stuff, especially having had both parents pass away from cancer...)

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10/11/12 10:14am

I've had JRA since age 5, and I've had 5 total joint replacements in the past 30 years including both shoulders.  I've developed a quite a high tolerance for pain, so I truly didn't notice the signs when my shoulders began to be attacked by my faulty immune system.  Looking back though---it was obvious what was happening.  Something else--- people with RA learn to compensate for pain and stiffness by leaning to another side, putting more weight on another joint, and other things that we are often not even aware we are doing.  When my shoulders first got bad, I adjusted my behaviors considerably (For example:  I sat up with a book on my lap to read rather than laying down and holding a book up or laying on my stomach and proping myself up on my elbows. I leaned over to brush and shampoo my hair.  I fastened my bra in the front and twisted it around).  It wasn't until I had total frozen shoulders that I was forced to deal with the problem with intensive physical therapy and eventually with surgery.  There was pain in my neck and at the base of my head, but also in the upper back/shoulder area.  I also had considerably painful bursitis in my shoulder.  Don't wait for physical therapy because total frozen shoulders is incredibly debilitating.  AND once you lose your cartilage, don't wait too long for surgery because the worse your muscles and range of motion get, the harder post-op recovery and therapy will become.  Talk to your Rheumatologist and get X-rays because it is always better to know than to worry.  Good luck.

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By Mimi— Last Modified: 10/11/12, First Published: 09/25/12