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Choices Series
Don Fraser
Tuesday, November 13, 2007 at 06:25 PMre: Choices Series
Robin Cunningham
Wednesday, November 14, 2007 at 09:27 PMDon:
You hit a lot of issues. The US had disability programs and some drug coverages. Many people in this country get disability, but these benefits are insufficient. The benefits put them below the poverty line. I talked with many people whose benefits will pay the rent, but then they have choose between food OR medications. It's a disgrace that the richest country in the world cannot do better tahn this.
If they find work, but earn more a certain amount (which is less than the amount of their benefits), they lose their benefits, which puts them in the hole. In a sense they can't afford to work. Yhis is not not good treatment practice.
Stigma is a big part of all this.
Keep your comments coming.
[By the way, I responded to your comments from last weeks blog, but not until the end of the week. If you go back to Choices #7, you will see my comments.
Robin
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Functionality and Funcrionality
Janet
Tuesday, November 13, 2007 at 06:56 PMI do agree with what you are saying but I do have a question for you. How do your relatives react when you tell your story to others? I am a 47 year old woman living at home who would like to educate others about living with schizophrenia but I do not think my parents would approve of me doing so. Don't get me wrong my parents and sibling support me and are a great support team but I do not think they would like me to go out in public to tell my story. The other day while volunteering at a local hospital I did educate a few co-workers what it is like living with a Mental Illness. It made me feel good and I think they did come to realize a little of what we live with.Telling Others
Christina Bruni
Wednesday, November 14, 2007 at 02:35 PMJanet,
You are an adult, and have the right to make your own choices (and you are responsible for the consequences). You don't have to do what your parents say you should do.
Kindly remember our e-mails of about four or five months ago. You live with your parents, and that's okay for now, but I don't think they have the right to tell you to censor what you say and do. You have another option, as we had discussed.
Please understand I say this out of care and concern.
Cheers,
Chris
re: Functionality and Funcrionality
Robin Cunningham
Wednesday, November 14, 2007 at 09:36 PMJanet:
I have a good friend who had a very similar problem, only it was her children who were opposed to her speaking out. She spoke up anyway through a newspaper article (which was exactly what her children did not want). But now that her family has seen how her article and subsequent speeches have helped so many others, they have done a 180 degree turn. They now support her efforts whole heartedly and assist her in any way they can.
Robin
Robin
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Choices
-Mike-
Wednesday, November 14, 2007 at 12:53 PMAs someone with schizophrenia, I am myself just realizing that I am part of a minority group and it is my responsibility, when the opportunity presents itself, to educate those who do not understand mental illness. By being ourselves, standing up tall, and expressing our experience to others, we can change perceptions one person at a time.
re: Choices
Robin Cunningham
Wednesday, November 14, 2007 at 09:58 PMMike:
Very well put!
I train other consumers to make presentations about their mental illness to the general public and many other types of audiences, and I tell every one I train that they are providing a very important public service. And I mean it! Think about it. It's a service no one else can provide. They [and you]speak with experiental authority and people listen very carefully and ask a lot of questions because they know they're hearing the unvarnished truth.
I don't know where you live, but get on www.nami.org and find your state or nearest local branch of NAMI [National Alliance on Mental Illness] and ask about their "In Our Own Voice" [IOOV] program. They will train you to speak about your illness, and like me, they will provide you with as many opportunities to talk as you want. It's a wonderful program. It's a very good fealing to give these presentations. People treat you with great respect you for what you have been through and how you have handled it.
It is because of this program that I ended up writing blogs for www.SchizophreniaConnection.com.
Get back to me and tell me what you think.
Robin
re: Choices
Mike
Thursday, November 15, 2007 at 03:19 PMRobin,
Thanks for your response. I actually had the opportunity to hear an “In Our Own Voice” speaker, and found it very inspirational. I have great respect for you and others who actively work to dispel stigma though presentations and the written word.
It is something that I would consider doing in the future, perhaps when I have a few more years of recovery under my belt. I’m only 27, and I had my first episode about a year and a half ago. I’m still trying to carve out a new life for myself by adapting to my new strengths and weaknesses. It can take a while to crawl out from under schizophrenia’s shadow and see the light of a new life.
However, as I go through this process, I still feel able to use my experiences to help people understand this illness, albeit on a smaller scale. When I see relatives for the holidays, when I talk to friends, even when I go to the dentist and they ask me what medications I’m taking, I can act unashamed and honestly answer questions they may have about schizophrenia. In this way, I hope to change the way they think about mental illness.
Mike
re: re: Choices
Robin Cunningham
Thursday, November 15, 2007 at 05:05 PMMike:
Good for you! Your speaking out when the opportunity arises and that's precisely what we need to do.
You shouldn't do anything until you feel you're ready for it and that usually takes some time. I've got a few years on you. I've had schizophrenia for over 50 years. Listen to your heart and mind, and you'll know when the time is right.
Robin
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Functionality
Christina Bruni
Friday, November 16, 2007 at 08:21 PMHey Robin,
Another great blog! I'm at the Internet Cafe as my hard drive crashed, so I have no Internet at home, the tower is in the repair shop. Just wanted to chime in with some words of encouragement for Mike and the others. I really do believe there is no shame, and we shouldn't blame ourselves for getting sick. The only control we have over it is our response to what happened.
I urge everyone to keep the faith!
Happy Thanksgiving!
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Hi Robin , I'm glad you got away from that first bit there. It sounded like I had to confess my sins.
Funding is a major,major issue here in Canada, too. I assume you have drop-in centres and the like. Our clubhouse here"The Phoenix" was patterned after your Fountainhouse in New York City; the original patient drop-in centre in North America.
You were writing about healthcare.Our medical system here makes it possible for me to take atypical meds without costing me a penny. But our system is not without it's drawbacks.
Do you have a guaranteed or handicapped income benefit in the US.?
It's been a Godsend for me here when I was too sick to work.
Of course , something that crosses both borders is the comment you made about funding for mental health. It seems that we're always at the bottom of the barrel for gov't spending and the private sector couldn't care less.
Fear of the unknown. That's what is holding back people from being educated about mental illness. Our figures show that here in BC 2 in 5 people will be affected by mental illness. And you know ,it's true ! Almost half the people you talk to , even if they have not experienced illness, know someone have a relative, or a friend of course this is something that nobody talks about. It's like cancer in the 50's "No,no cancer in this household"
It's just fear that holds people back .Fear of losing their social standing,fear of repercussions, fear of being physically hurt, fear of God?#$^&.......
There was a sad story of a young man in Newfoundland, who; when approached by police, picked up a small pair of scissors from a drawer. The police shot and killed him. All the paper said was that he was a schizophrenic.
Take care, Don