My first experience with the mental health care system was when I attended a day program shortly after I was released from the hospital the first time. I participated there for about 13 months and then was sent to another day program that I attended for about nine months. The counselor at the second program was not convinced I could go to work although she did submit the paperwork for OVR, which is now VESID, the New York State agency that trains people with disabilities or sends them to school so they can get jobs. I obtained my first job as an administrative assistant after I completed the clerical training.
While at my second job I decided I wanted to join a group therapy. The social worker who did the intake operated out of a brownstone in an exclusive neighborhood in Brooklyn. At the second intake session he told me there was no way I had schizophrenia. I had just gotten out of the hospital five months earlier because I had stopped the medication and relapsed. He took one look at me coming straight there from work in an Anne Klein suit and promptly decided because I wasn't babbling that I couldn't have schizophrenia.
I promptely decided not to join his group therapy and attended instead the group therapy of a wise, compassionate woman who told me, "You're perceptive and self-aware. You could take over my chair."
Five years later I wanted to return to group therapy and met with another woman social worker who told me, "You're doing so well. I'm afraid you're not a candidate for group therapy because it could bring up a lot of upsetting feelings." Can you imagine?
A friend once told me that everyone keeps saying the mental health system is broken but nobody's been able to fix it.
One way to fix it would be to educate therapists and doctors that people with schizophrenia can recover and that those who do recover aren't some kind of oddity. These kinds of professionals think that people with schizophrenia are resigned to being warehoused in adult homes or day programs. If you can walk and chew gum at the same time they think you can't have schizophrenia. This is sad indeed when their expectations of us are so low.
Luckily: and I'll end here: my psychiatrist Dr. Altman is someone I wish I could clone and give to other people diagnosed with schizophrenia for their treatment. I can tell he values my insight and is genuinely concerned about my mental health. So maybe I would be one of those patients in the 80 percent who say their psychiatrist do well or very well in treating them with courtesy and respect.
It is a professional marriage of my insight and honesty with him and his education and expertise with the latest treatments. I've seen him since July 2003 so it's been seven years so far working with him.
Above all I feel a therapist or psychiatrist must LISTEN and not treat us with a cookie cutter approach.
Now I'd love to hear from you on this topic.
To read the details of the news article on the schizophrenia patients survey you can log on to my ChristinaBruni Twitter account and click on the link to the survey.
My experiences with the mental health system have been diverse, to say the least. From doctors to nurses to mental health workers to orderlies and making stops along the way for boarding home co-ordinaters and even psychiatric social workers.
Overall I would say, honestly that I would not give the entire group a passing grade.
There were good ones and bad ones and maybe those were my good times and bad times but so be it. I suppose acute care is more difficult than sustained care.
Christina,
This is a topic that has changed and still changes with me.
My first experience with an outpatient center turned out to make a huge difference in my life. After they gave me a huge intake they told me to come back in a week. I pleaded for help and got none. I ended up in the state hospital a few days later.
The state hospital turned out to be a good experience. They trained me to work and pushed me to graduate from high school. I was given knowledge that I use to this day.
My current pdoc sees me for 5 minutes to give me a shot. He told me that he doesn't want to do therapy on me. He often uses "F" bombs. All I get is my shot and a bill. BUT I am doing good with his brand of psychiatry (meds).
On another note. I volunteer at a state psychiatric outpatient faclity. I am frustrated to see the "consumers" do nothing all day! I mean ALL DAY! It reminds me of the locked units.
NY state cannot force "consumers" to go to groups. They make rules but not consquences for breaking the rules. It stinks that the state is NOT helping these people. Most of them sleep ALL DAY! despite rules telling them they aren't supposed to.
The state way is a crime to the mentally ill. I may be wrong in some eyes, but I turned out well. Not many people with NO MI have accomplished what I have.
I work for change. One question for the state and their way of help..."How's that working for you?"
David
I think psychiatrists are excelling at a pace social workers are still lagging behind in. Psychiatrists are recognizing that people like myself can make extreme improvements based on the medical model of treatment, where social workers I have encoutered still treat me as if I am feable, or less than. In my humble opinion, of course I beleive my psychiatrist is the greatest, and saved my life, and I change social workers like I change underwear, so .......
I also seen and read the article on doctors, patients, respect and such and the doctors I have now are very, very good with treating me with respect and honesty. My psychologist/psychtherapist is just the best and she is always challenging me with my illness with psycho treatments. My psychiatrist feels that after 8 years of trial and error I am very stable on my meds and that there will be no increases or decreases. My direction is rehab and recovery and I have and put in a lot of work trying my best. I will continue.
I have nothing but good things to say about my psychiatrist. i have been with him since 1983 and while I have not always been the best patient I do give him credit for the care he has provided me with all of those years. I still am with him and i feel he is the best in my area at least for me. I still remember the time I called him on Christmas night and how he returned my call in a realtively short time period. I only see him once every 4 months but I do know if I need him I can always call and he will give me a call as soon as he can. I also get along good with his secretary and know that when I do call she will also let him know that I am in need of his help. Some may feel that this psychiatrist is only doing his job but in today's day and age I realize all doctors are not the same as mine.
Hi Janet,
It's good to hear from you.
I'm glad you've found a doctor you can trust and who is there for you when you need him.
Enjoy your evening.
Cheers,
Christina