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Question of the Month: Schizophrenia: A Day In The Life

By Christina Bruni, Health Guide Saturday, April 02, 2011
One of our interns has been working with the staff to create a list of SZ topics to cover at the Connection in my SharePosts.   No. 16 was "A day in the life of a schizophrenic."  I'm quoting his response as I wouldn't use the term schizophrenic.  So let's change this to: A day in th...
Schizophrenia Breaking News: April 2011
Christina Bruni, Health Guide
4/ 2/11 9:14am

I take Geodon now and as a result I'm awake at least one hour if not two or three hours earlier every day.  It was a miracle drug for me as soon as I was placed on it four years ago.  I can't believe it's already four years since Dr. Altman began the cross-titer from the Stelazine to the atypical.

 

I often wake at six or seven in the morning.  I eat breakfast at nine o'clock.

 

Luckily within three weeks of being given the Stelazine, when I was first diagnosed in 1987, the positive symptoms were halted.

 

About once every two or three weeks I have trouble riding the subway or in restaurants mostly.  How I can describe it: the thoughts are like laughing jack-in-the-boxes popping up in my head and mocking me.

 

So I'm one person who got to the point where the illness is manageable for the most part.  Today I go to the gym to work out, get my hair cut and meet with some other peers for support.

 

I would like to attend a peer support meeting as often as I can.  I used to do this five years ago and I recommend it as a great coping strategy.

 

Right now the alarm I set for nine o'clock has gone off only I woke at 7 a.m. again so was up two hours earlier.

 

Certainly: I was lucky the medication worked and have an easier time of it.  Only I do feel life is hard and I wonder if other people have it hard or do they breeze through their days?  It seems that living with SZ I have to work twice as hard as the next person to get what I want in life.

 

So I wonder what a day is like in the life of other people living with this illness.  Let's set the intern straight who compiled the topics for me to cover here.

 

Also: we can give support to others living with schizophrenia.

 

I can tell you there is hope.  I must also tell you: sometimes success comes at a cost.  I know I take a great risk via public disclosure at SchizophreniaConnection.  The cost of my silence was too high a price to pay: in my recovery and for the greater good of society.

 

I feel the SZ isn't so bad really.  Is that because I'm an eternal optimist?

 

I'll go sign off now because I have to get ready to meet the day.  I won't have a moment to breathe once I hit the pavement.

 

Cheers,

Christina

4/ 2/11 11:06am

I was diagnosed at age 37 and am 52 now.  I think I have been through the worst part of my own battle with schizophrenia...at least I sure hope so!  But I remember having trouble just getting through a spoken sentence, and much more so to get through the day.  With Zyprexa being taken away and Saphris added a few months ago, my daily existence has become more than that.  More than plodding through paranoia and fear and depression and anxiety, sleeping way too much, dreading public places.

 

My day now begins much earlier, like Christina's.  I imagine I have 4 or 5 more hours awake each day than I did on the Zyprexa, although I still take the occasional nap.  Today, in fact, is a take-care-of-Donna day.  I have sworn off running errands and going to my mother's rescue just because her computer is acting up.  I watched a favorite TV show this morning and now can actually enjoy television shows as a whole rather than feeling bombarded by separate sounds, colors, voices, themes, settings.  I used to have trouble putting them all together and making sense of the story.  I can go to a movie now, too.  And read a book, although I don't read nearly as many books as I did pre-diagnosis.  I used to have 4 or 5 going all the time and carry one with me to read every time I have a spare moment.  Now, most of my reading is confined to reading the Bible each morning and reading a chapter in a murder mystery once or twice a week.  I don't keep up with the news, still, because it seems to bring a feeling of anticipated dread over me and I start worrying too much.  Better for me to leave it alone.  But what I am saying is that beyond mere existence, I now have a life that I feel comfortable in and that I feel is worth living.

 

Much of my life, I measured my self-worth by "what can I get done today?"  But with the onset of more severe symptoms, I was forced into a situation where I wasn't sure what a day would bring.  I often went without basic hygiene, slept in my clothes, went for walks at 1am, and thought a lot about killing myself.  I couldn't keep a job because I lacked the cognitive skills to learn new tasks, although I did finally work for a while cleaning restrooms and sacking groceries at a local store.  I could handle that pretty well on a good day.  Now, I don't work.  I have a disabiltiy pension and SSDI that allow me a fairly comfortable lifestyle.  So sometimes people think I have a lot of spare time and sit around doing nothing, and actually, that is not true.  I write and edit poetry, I take care of my plants, I take care of my mother and am her chauffeur even though we still live apart, and I now have 3 friends I see fairly often.  I have started painting on Thursdays with one of these friends.  She struggles with bipolar disorder, so we have some things in common there.  It is like art therapy for both of us.  But yes, I have plenty of activities and have a regular routine, am taking good care of personal hygiene, keep my apartment clean, and go to church on Sundays.  I try to do things for other people.  I have heard that you should never be satisfied with where you are -- you should always go for something better.  However, I am peaceful, calm and content to be exactly where I am, doing exactly what I am doing.  How many people can say that?

4/ 5/11 6:43am

I have been meaning to respond to your post Christina. I tried twice and it got lost in cyberworld.

 

My day starts very early around 3am-5am. Since I left work a few years ago my sleep schedule is chaotic. 

 

I start my day by praying, then I read for about an hour , then write in private journal. Then on the net for about an hour or two. Then housework maybe some baking.

 

How do I live with SZA? Its been a huge part of my life that at times I don't even notice I have it. The 4th of April (yesterday) marked the 31st anniversary of the day I first heard voices. It isn't a solemn day anymore, its more like a reminder of how far I traveled the path of my "illness". I rarely hear voices. My paranoia is all but gone, I do on occasion get depressed. I write daily. Writing for me is a release of thoughts. Its much easier to "see" when my thoughts are right before my eyes. I do so much in a day. I started getting physical in my doings as to stave off anxiety (my lastest symptom). Now I take it too far and go so much that I exhaust myself. So what is worse? Feeling anxious with voices or exhausting myself? That question I struggle with ..either way I hurt my mind or body.

 

I don't know if I answered your question, but for today and today only I am and will do whatever I can to help myself.

 

David

 

 

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By Christina Bruni, Health Guide— Last Modified: 02/19/12, First Published: 04/02/11