The only thing I can say is that I thank God the medication did seem to work and we didn't have to experiment with too many meds. Like I said I'm friendly with many women who have gone through the scenario you painted, and they're faith people, they're strong people. We take one day at a time. We hope that today our loved one is going to get through the day as comfortably as possible. We're always doing our homework to find another medication or doctor that would be better. Those are hard stories and support for each other is big. We also started a prayer group, it meets once a month. So I hear all these stories from my Family-to-Family class, and from the prayer group.
It's taking one day at a time, not giving up and doing what I call "our homework" behind the scenes so that we're fueling ourselves with information that we can give our loved ones. Just never giving up. There's a lot of research and a lot happening out there.
CB: Could you give us some parting words of encouragement and hope?
P: Be with people who understand you, whether that's a support group or a prayer group. Be with people who are a little ahead of you. Don't be with people who are negative or are going to pull you down. I was inspired by people who were ahead of me on this journey. I looked for that, grabbed for the positive. I was inspired by some NAMI couples and families who had done things for their loved ones that I said, "Oh God, I could never do that, I don't have the strength to do that." So I would say focus on the positive, be with people who are a little ahead of you and can give you inspiration and hope, and positive thinking and information.
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