Thursday, February 16, 2012
Introducing Mood 24/7, a new tool that helps you track your mood from day to day using your mobile phone. Try it today!

DeeDee17

Written by

DeeDee17

DeeDee17

Sun, March 22, 2009

I had to write...
DeeDee
Saturday, March 21, 2009 at 05:36 AM

My husband is 34 and was diagnosed at 18. We have been married now for 6 years. I married him knowing full well about his illness. I can't say its been a bed of roses but life is good, today. It is alot of work to be married to him, and yes I sometimes wish I had not married him....like the days when he curses at me or is short tempered with our two beautiful girls. Over time it has been a roller coaster, and I accept that it will always be that way. I accept him as he is but when he can not make the rational choices, I make them. I read eveything about his illness and meds, talk to his theripist but don't ask about his sessions, look for red flags in his behavour, count his pills...hide nothing from him and tell him when I tink we need to go to the hospital and that I will make him go! I am in his face about his illness....Because I know that the man he is is worth it...I will fight this illness for him when he can't.... Yes I understand the feeling of no control...I hate the illness....I resent the illness.....but not him. But I also don't waste time feeling sorry for him...or me. And anger is useless without using it to improve things instead of tearing things apart.

 

That being said....we have had are share of problems aside from his illness (things that are made worse by his illness but not caused by his illness.) Because he is stable on his meds, we have been able to address those issues. I don't know if any of this helps but I guess what I'm trying to say is, the illness and the person are two seperate things. You can't make a choice about the person untill the crisis is past and you both have some healing. The strength my husband has shone in fighting his way back to me and out kids.....that's where I get my stength from. I admire him. I love him more then I hate paranoid schizphrenia. I just felt like I should write this because the things I read on this site seem to talk about all the bad...there will alwas be bad...its a incurable illness....it will never go away.....but when I look at my husband, whether its a good day or bad day....he is still in there. I want him to see I'm still there too.

 

3/22/09 7:47am

Thank You for your post. I agree with you 100% when you say there will be both good times and bad times. Also I agree with you when you say that you must look at the individual with the illness and the person separately. I commend you on taking an active role in your husband's life and his illness. I have been living with schizoaffective disorder for over half of my life. I wa first diagnosed at the age of 23 and and I now am 49. I am so thankful I have a loving family that stands by me through the bad times and loves me al the time.

 

I would like to close by saying I wish you and your family nothing but te best and again I commend you for posting on this site and for standing my your husband..

3/22/09 11:20am
hi janet, I just had to write because the things i was reading just didn't sit well with me. I came to this site to see if anyone had any idiea on how to do things better with and for my husband...all I saw were things about should I stay or go or how hard things are living with a person with this illness...I just believe that those are not the right questions or outlook. As for you saying you commend me...don't. I'm not a marter...I a wife and mother, with a problem illness afflicting someone. Its not commendable, its just life. Thank you for the well wishes and I hope you are doing well.
3/22/09 11:09am

Hi DeeDee,

 

What an inspiring SharePost you've written for all of us to read.

 

You are a wise woman and your words are right-on.

 

We are people first, not to be identified by our symptoms.

 

We have personalities, quirks, talents and traits just like anyone who doesn't have SZ.

 

I admire your courage to stand by your husband and fight with him against the SZ.

 

You are so right to tell us to remember the good things.

 

Because there are good things.

 

Regards,

Christina

3/22/09 11:43am
Hello Christina, I'm glad that you appreciate what I wrote. It's not wise, it's accepting people for who they are..not what has happened to them. Everyone's life is a roller coaster..just for different reasons. If you care for someone..you take the ride...hold on down hill and laugh up hill.
4/ 8/09 1:58pm

Dee-Dee,

 

Thanks so much. I have a recently diagnosed 16 yr.old son. I am really struggling trying to stay positive. I am beginning to be able to accept things. It is difficult, but I will not ever give up or abandon him. I am a better, stronger, person and I do have more empathy for others. Keep posting. I need to hear the positive things so that I can change my attitude.  Your post gives me hope that my son can someday find a woman of strength and character who will love him.

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1460) >