Thursday, May 31, 2012
Introducing Mood 24/7, a new tool that helps you track your mood from day to day using your mobile phone. Try it today!

Better late than never...

By Merely Me Tuesday, October 13, 2009

Hi there

 

I haven't posted in forever.  But did want to give a quick update...I finally went to see my mom who lives in another state.  She has been in the same group home for two decades now.  They take good care of her...she is a part of their family.  I think they said she is taking Trazodone and...Geodon.  Are these good medications for schizophrenia?  Long ago she took the heavy duty drugs including Haldol.  Her hands shake now but I am not sure if this is due to the meds or just old age.  And she has diabetes.

 

It is always hard emotionally for me...to see her.  But she was pretty good this time...not agitated and she was calm and happy and...lucid.  Usually she thinks I am an imposter but...none of that talk this time.  She does think, however, that the group home manager dies each time he gives her a pill and then comes back as a different version of himself.  So evidently he is on his 75th reincarnation.  And...coincidentally...my mother will soon be 75.  Maybe there is a logical link there somewhere.

 

Took her out to her favorite restaurant...Red Lobster.  She likes shrimp.  And it was real nice. 

 

Not sure how many years she has left but...I want to see her more often.  She really tried her best as a mom.  It was hell...I can't lie but...hey...she loved me.  So that counts.  a lot. 

 

For anyone who has a parent, child, or sibling with schizophrenia...I know it is hard.  Please hang in there.  They are doing the best they can.  I used to get mad at her when I was a teen and...now I just view things as...she was and is a victim of this mental illness.  It was never her fault. 

 

I am tearing up here so...I better stop writing.  But just wanted to give an update.  Thanks for listening.

Just watched "The Soloist"
10/14/09 5:56am

My wife and I drove to Florida from NYS to see my folks. They are both 73.

 

Visiting your mom was good. Its also good that you 'see' her in a good light.

 

Take care,

 

Dave

10/16/09 4:00pm

Thanks Dave!

 

How are your parents doing?  It is hard to see parents getting older...least it is for me.  That is quite a drive. 

 

I will have to read more of your posts...I am glad this site is here.

10/14/09 2:41pm

Hi,

 

I've been on Geodon for a little more than 2 years and it works well for me.  I was taking Zyprexa before that and it made me gain a lot of weight.  I was hungry and thirsty all of the time.

 

I'm glad to hear that you've been so supportive of your mom through all these year. 

 

Take Care,

 

Rene

10/16/09 4:01pm

Hi!

 

Is the Geodon better than the other meds then?  Less side effects?  My mother is thin so it doesn't appear that this med makes her put on weight.

 

Thanks so much for your comment.

10/15/09 7:22pm

Hello there,

 

Was just reading your beautiful posts here...

 

My mother too had paranoid sz for most of her adult life, and of course, this made life extreemly difficult.

 

This really does bring back many memories... Of waking up in the morning with my mother gone and my grandmother there instead. Telling me my mother became ill at night and is in the hospital. But her condition was kept secret for many years. Perhaps it was best so.

 

I also remember the rare sane days my mother had when she was her wonderful, generous, kind,  intellectual and truly aristocratic self... My mother despite her disease has been a truly superior person. There are some qualities in her that i am simply in awe of. Even at her worse, she always had certain limitations certain boundries that she never crossed. Never-no matter what... Show me a sane person who can do that... She never hit me, she was always scrupulously honest. She is a person of complete integrity. She has always given me unconditional support, and still does. All this while being so very ill...

 

Thank you for sharing such a positive and humane view of your mother. I find that mediocre people often have difficulty appreciating the many positive and beautiful qualities of someone you love who is afflicted with mental illness. Stigma and prejudice seem to be the general rule rather than an exception.

 

It is so refreshing to read a positive view-point.

10/16/09 4:05pm

Wow...I am clinging to your comment here.  Growing up...I never knew anyone who had a mom with schizophrenia but then again...I didn't really talk about my mom.  So people didn't know about us.

 

My mother would become violent at times...but it was mainly due to her hallucinations and...just becoming agitated. 

 

I would love to hear more about your life with your mom.  I haven't delved into this topic...but...I feel I am more ready to now.

 

Thank you so much for sharing with me.

10/16/09 5:16pm

Hello there again,

 

Do you know, several years ago a social worker who was working with my mother wanted my mother's premission to write about her life in a book he was compiling on people with mental illness... (she refused)

 

Life with her was very difficult, but like you, i am glad she raised me and that i was not transfered to an institution. This was due largely to my grandmother's intervention. To this very day i can still remember when an ambulance came to our house (we lived in a small rural town), and a white-coated man (perhaps a doctor ora para-medic) held my mother down as she screamed while another white-coated woman gave my mother some sort of injection. Then she was taken away... She had on a light blue paisley dress... I was no more than 4 or 5 years old then. (i am now 46) Another ambulance took my brother and me to a foster home... My brother cried, but i didn't the callaus woman who came with us just said to my brother: "why are you crying, there is no reason to cry..."

 

We spent the summer in foster care. The people were not unkind, but i missed my mother so much... She is a very warm-hearted woman. Generous and kind with real sympathy for those with misfortunes. Despite being so unfortunate herself... No hard luck story ever appealed to my mother in vain.. She was a living example of empathy and social justice... What more can i tell you about my lovely mother? She was simply a divine person...

 

I belive what brought on her illness was her father's abandonment of her and her three sisters when she was in her early teens. She was the oldest and very close to her father. She dearly loved him and he abandoned her... Even to this day i don't belive she has ever recovered from this shock. She never spoke about him or what had happened. i learned of it from my aunt.

 

Today she is almost 85 and very fragile (physically). So much so that her mental illness is no longer apparant because she is so weak. She spends most of the day in bed and is fading fast...

 

Throughout the years i have kept my mother's condition a total secret even from my own family (other than my 3 aunts, my husband, and 2 very elderly cousins of my mother's who knew), from my husband's family, my children and closest friends.

 

This was not only to protect my mother's dignity, but to protect myself and my children. I am sure you realise that though society has come a long way, mental illness is still considered a very dark stain...

 

My parents divorced when i was an infant, but i still remember how my father refered to my mother when we saw him... To this day (though he died 12 years ago) i haven't forgiven him for slighting her dignity. She was an infinitly superior person to him.

 

As i said, after that summer we never returned to our house again. We (along with my mother) went to live at my grandmother's apartment. I later learned that this arrangement was one of the conditions that allowed my mother to keep custody of her children.

 

Of course there was always much pain and suffering always trailing after my mother. She screamed so much and so often. To this very day i simply cannot bear to hear people screaming.. She was unstable and unbalanced, and unless forced to, always going off her medication. (Whatever was available in those days)

 

But she also always bought us presents. And always hugged and kissed us and lavished all the love of her big heart on us...

 

She is great! A true original! My children love her, and like children over-look her eccentric behaviour. My son is espeically close to her. He tells her: "Saf-saf, (his pet name for her) don't worry, soon the messiah will come and he will make you young and healthy again..."

 

Do your children know your mother? What are their feelings towards her? What brought on your mother's illness? Was there no grandmother, or family to help out?

 

Thank you for enabling me to write this. As i said, i've always kept my mother's illness as a closely guarded secret. Behind the anonimity of the internet it is a rare relief to be able to tell all this...

 

I am sure there are many more people out there who grew up with mentally ill parents, but i suppose they too cling to their privacy and shroud of silence...

 

Thank you again for your truly lovely posts...

 

 

 

10/19/09 3:08pm

Hey there

 

Oh I have read your story here about three or four times now.  I can relate to so much.  I had the experience too...more times than I like to remember of my mother being hauled off by police...the whole paddy wagon thing...it is so traumatic.  My father died when I was four...from alcoholism.  He and my mother met in a mental institution.  I am telling you...we both could have Lifetime movies of the week.  lol

 

But like you...I do love my mother.  She is a kind and gentle spirit and when she was in remission from her illness...didn't happen to often...she was magnificent...beautiful...smart...creative.  I am going to cry again...sheesh.  So it is hard to know that the life she would have wanted was not to be.

 

This is why it is hard for me to come here...I start to cry.  I am a big 'ol sap.

 

You gave me such a gift by sharing your story.  I would like to keep in touch with you here.

 

Thanks again...

Christina Bruni, Health Guide
10/15/09 8:45pm

Hi Merely Me,

 

I hear you.

 

I interviewed my mother for the Connection and she admitted that every time she drove home after seeing me in the hospital, "It was a heartbreak."

 

So I can imagine how it was when you were growing up with a mother who had schizophrenia: it was magnified, I'm sure.

 

Your Mom seems to be doing okay and appears to be in good hands.

 

I'm sure she loves you and looks forward to your visits.

 

Please feel free to write a SharePost here whenever you're able.

 

Regards,

Christina

10/16/09 4:09pm

Hi Christina!

 

I want to tell you how much I appreciate this site and you...and all the members.  Oh how I wish that I had such a site growing up.  I think I will write more here...I think this will be healing for me.  I wasn't ready to talk about this before but I feel I am ready.  I have many questions for you...I will try to space them out. 

 

Thank you so much for all that you do!  You are a beautiful soul.

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1489) >
By Merely Me— Last Modified: 12/19/10, First Published: 10/13/09