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Tuesday, December, 02, 2008

Schizophrenia: Time for a Name Change?

by  Jerry Kennard
Monday, August 18, 2008
Jerry Kennard
Jerry Kennard
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Jerry Kennard is a psychologist

Dr Jerry Kennard is a psychologist and academic who lives and...

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What's in a name? Well, quite a lot if it happens to be schizophrenia. Public misunderstanding of the term continues to be fuelled by lack of proper education and by media portrayals of the association of schizophrenia with criminality and violence or vaguely disturbing and unr...

 

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  1. name change
    David Robbins
    Monday, August 18, 2008 at 12:50 PM

    YES!! It's time for a change. Actually it's overdue. I don't even like the term "mentally ill." Hollywoods portrayal of us is appalling and damaging. I proposed a different term on a site and the respondse I received was discouraging. One individual stated "you can't change a leopard's spots." I never believed in that. I believe that an avalanche begins with a snowflake. Let's band together and fight for change.


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  2. What's in a name
    tinker
    Monday, August 18, 2008 at 07:37 PM

    I don't know about the new name, but I do know that when the Dr. told me I was "schizophrenic" I wanted to die.  No cure.  Awful, serious drugs.  Denial...I didn't have seven personalities popping out.  I still am not the most educated of the disease, but I know the name!

    Thank you...I think something else would be great for me!!!

    Tinker


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  3. Renaming Schizophrenia
    Cajundweeb
    Saturday, August 23, 2008 at 05:57 PM

    It's about time someone came up with a more accurate term to describe schizophrenia!  Perhaps if more people use the new term rather than the old one, it may reduce stigma!


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  4. What's in a name?
    Anonymous
    Tuesday, August 26, 2008 at 03:40 AM

    As a mother of a 27 year-old daughter who has been diagnosed with Schizophrenia, please add me to the list of those who would love to see a name change.  Both consumers and their families have an uphill battle as it is.  Having a diagnosis associated with a name that has so much stigma attached to it is just one additional hurdle to have to constantly overcome.

     

    Thank you for your wonderful article!

     

    Sincerely,

     

    Lori Pastorelli


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  5. Sz by any other name....
    Gurudatt Kundapurkar
    Tuesday, August 26, 2008 at 11:48 PM

    In our support group for persons diagnosed with major mental illness we consciously avoid terms like schizophrenic, client, consumer or patient.  With all good intentions we coined a Sanskrit word, shubharthi, which literally means 'seeker of well being.'  We were under the impression that this word was capable of restoring dignity without any connotation of illness or commerce.  However we were shaken up by the remarks of a support group participant who had made considerable progress (transition from not being able to even have eye-contact with another person to being able to interact with a stranger) when she remarked : On my next visit to the doc I will tell him that I don't need any medication as I am no longer a shubharthi.  Which meant that shubharthi, to her, didn't convey anything better than schizophrenic! David, would we gain anything by re-labelling sz as 'integration disorder?'  A person may progress through phases such as sufferer to struggler to survivor to thriver but if he has not learned to carry on with life but is haunted by his past he only is responsible for the self-generated stigma.  I wonder whether Jerry agrees with me. = Gurudatt, Ekalavya Self Help Support Group facilitator, Pune-India


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    re: Sz by any other name....
    Jerry Kennard
    Wednesday, August 27, 2008 at 05:41 AM

    That's an interesting question. The scientist in me says we should never generalize from a single case. The fact that one, or two or more people struggle with the concept of name change, doesn't mean it has failed. It simply points to the fact that it takes time to change attitudes.

     

    I think things can improve as a result of name change but it might be in terms of generations rather than years. There will always be prejudice and fear and the tendency to highlight the deficiencies of others, so I doubt that will ever change. In the case of schizophrenia it's maybe about the name reflecting what we've learned since it was first coined. Does sz really reflect our contemporary view of what is involved? I don't personally think it does - so it seems stuck in some historical context along with all the negative connotations and misunderstandings that go with it. It could be that grasping the nettle and changing the name would ignite a debate as to why the name should be changed. Breaking into prejudice and ignorance isn't easy but everything needs to start somewhere.

     

    Incidentally, I applaud your attempts and I feel you stick with your convictions.


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    re: Sz by any other name....
    Chris
    Sunday, September 14, 2008 at 12:00 PM

    Hi,

    Firstly may I say your support group sounds mutually supportive, and the name shubhathi, carefully chosen to convey people with the aim of seeking wellbeing,literally to be released from  'dis-ease'.

     I just have another slant on the announcement from one of the group, that surprised you, which would not mean that she was equating the word with the negatives associated with word sz.

     I just wonder if it wasn't another version of saying 'I am now well and don't need meds'. So very common after early progress on medication and support.

    Hope you don't mind me suggesting this.

    Chris

    UK 


    reply

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