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By Animus Thursday, January 17, 2008

Hi all, this is my 3rd attempt at my first sharepost but I haven't been happy with the others. I guess you could say my illness is severe or mild, I think it is severe , but I also seem to function ok most days. I tend to ignore the fact Im sick and I try to function everyday and ignore it. Something I have learned and developed over time. I was once totally encompassed by my fantasy world around me. I was deluded to the point of losing almost everything. I was finally institutionalised in 1999, raving about my supremely intelligent network of 'friends' that i had the privilege of hearing. All I could do was laugh, and the doctor said the laughing was a coping mechanism for my situation. I'm surprised I can remember that considering I could hardly string a few words together that weren't related to my "psychosis". Anyway I truly thought I was playing a part in a new world order, which I had previously been writing about in university before everything horribly went wrong.  So i was locked up for a month before I was able to leave. All I was taking at the time was an antidepressant which I can't remember the name of. No one knew what was wrong with me, not even the doctor. Crazy times though- I couldn't tell you what was going on at the time, I was gone. So when I went back home my parents basically had disowned me due to my crazy behaviour and outbursts. I was on my own. So I got a job in a restaurant and was very very lucky to keep it for almost 3 years. Went to the doctor and told him I was hearing voices, constantly, like a running dialogue between about 3 or 4 people. It was getting to the point where I would start getting annoyed at nothing- so he referred me to the psychiatrist in the area.

 

On my first few meetings with the psychiatrist, he came to my place with a social worker. We talked and I told them about my "friends" that were talking to me. The doc and social worker both insisted that they weren't real, but I didn't believe them. I kept seeing the doctor but I "knew" my friends were real. I thought I was a special case. I was put onto Risperdal. Every week my social worker would come and visit- I thought it was a bit invasive but she was nice and i didn't have many friends at the time so I welcomed her. Once she came to see me at work. She noticed that I was twitching and tapping my leg a lot, and she told me it was the side effects of the risperdal. I didn't seem to mind that side effect but she said she would recommend I go onto another medication. I didn't mind as long as it wasn't too strong.

 

So I went onto Zyprexa and can't remember much about that time except I was feeling better but experiencing terrible tiredness and lack of motivation. I started to doubt my doctors diagnosis of schizophrenia- it sounded too severe- and I am not one to get sick. By this time I had gone back to university but wasnt doing well at all.

 

In about 2002 my Mum came back into my life and wanted to know about me- I told her I had been seeing a psychiatrist and she was very happy to hear that- she offered to pay for a session with a psychiatrist that lived near her home- I wouldnt have paid for such a waste of money at the time but I found he helped alot. He put me through the usual tests- EEG and MRI etc and his diagnosis was closer to epilepsy- who knows why- but he put me onto epilim which I found to be very helpful too.

1/18/08 7:50am

First of all I want to welcome you to this site. Congratulations on writing your post and for all you have accomplished in your life. You have so much to be proud of! I can't imagine relocating to another country. I have been living with schizoaffective illness over half of my life and I know first hand all you have gone thorough. i hope you and your family can get on better and they can accept the fact you have a mental illness. I think it is very important for our families to back us!

 

Anyway I wanted to respond to your post and to say you are always welcome here and i hope you find this site as helpful as i have.

1/18/08 8:51am

Hi there Janet,

 

thankyou for your encouragement and support. I have had mixed feelings about what I wrote, but there is no sense in hiding it.

 

Anyway, thankyou for welcoming me to this site.

 

 

1/22/08 5:09pm
Welcome to this site. I hope you find it rewarding and helpful. I've had a diagnosis for 28 years now. I can relate to alot of what you said. One thing though you cannot ignore your diagnosis. When I was 1st sick many years ago there wasn't that many meds available. Now there is a whole host of em. The key is finding what works and taking them religiously. Also finding and using coping methods. I'm always looking for ways to better myself. This site helps tremendously. Good luck and hang in there.

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By Animus— Last Modified: 12/11/10, First Published: 01/17/08