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winter setting in

By Animus Saturday, December 05, 2009

Spent the last few weeks with a mild cold but my trip to Korea compressed my eardrums causing severe pain and blockage so I couldnt hear for a while. This of course had an impact on my mood and general health so things were really bad for a while. Just before my trip I saw a sleep specialist who, as I thought told me it was narcolepsy. I was taking the meds but occasionally forgot so when I went back to work last week, I was having major problems with staying awake. Finally yesterday I started taking them again and felt better. The Sz is always there, but as long as Im taking the meds it seems to be under control. My brain must be a total mess without medication. I wonder why. The coldness is getting worse. I have a continuous sense of being incomplete, or being under control. Dissatisfaction. My memory is failing me. I'm barely functioning, and I let people down.

While I thought I might have been getting better, I think its getting worse... It is a difficult thing to accept that I'll need to continue taking these meds until I die.

Narcolepsy
12/ 5/09 7:33am

I know its hard to think that you may have to take meds for the rest of your life. I realized that and when I stopped fighting it I began to feel differently. I am all for med taking. I wouldn't have gotten this far without them.

 

I hope you feel better.

 

Peace,

 

Dave

12/ 5/09 9:18pm

I don't know why it is, but I could echo some of your words and they would be true for me, too.  My mind is playing tricks on me, like loss of memory.  My AOL screen looks so different that I can't find what I'm looking for, although it really hasn't changed at all.  (Aol is offering a new home page, but I'm still on the old one.)  So I spend a lot of time sitting there and looking but not finding and end up zoning out.  There is also a distinct feeling that I am in the living room sitting on the couch, but here I am in my office, in a chair, staring at the computer.  It seems the screen is ever-widening and everything is being sucked into it.  Maybe I ought to go ahead and take my meds and go to bed.  That solves a lot of problems, doesn't it?

 

I'm sorry your trip to Korea was so distressing.  Your symptoms do sound painful.  And now breakthrough sz symptoms.  Take good care of yourself, please.

 

Carolyn

12/ 7/09 5:31pm

Hey, ya know? Winter is setting in, but look at the Christmas Lights. See if you got a little bit extra to buy a kid something maybe he'd like for Christmas, ya know, for a kid that maybe ain't gonna get nothing any other way, you know! It's gonna make you happy if you can do it and it'll brighten up your own days, but if you got real tight money and just barely eating, well, that can be a cold Winter too, but still there's lots of things and people's needs to lose yourself in, and there's a awful lot who have it just as bad as you and they can get by and do, and so can you!

 

Love,

 

Mike Jeffers

Christina Bruni, Health Guide
12/ 7/09 6:17pm

Hi MyAnimus,

 

I understand how you feel as you grapple with the reality that the schizophrenia will always be there in this lifetime you are living now.  I believe we walk this way numerous times and in another lifetime we could have greater blessings.  this might not be a consolation to you however I would like to offer it as a suggestion.

 

One thing I hope you can do is hold on to the hope that things can work out for you.  I too had a cold that lasted two weeks and ended the Friday after Thanksgiving-on Black Friday here in the U.S.

 

Feel free to continue to write SharePosts here when you feel the need to do so.

 

We will support you.  I know how hard it is to live with schizophrenia.  So I hope you take comfort in your involvement at the Connection and find some cheer here.

 

Enjoy the holidays.

 

Regards,

Christina

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By Animus— Last Modified: 12/20/10, First Published: 12/05/09