Turning pain into action

Today I read an article in Parade, a magazine that comes with the L.A. Times on Sundays. It was about how Susan Axelrod set out to save her daughter from uncontrollable Epileptic Seizures. She got to know other moms who were in the same position, formed a non profit organization to increase public awareness and raised money for research. I'm not even sure what's already out there for kids w/ sz, but maybe I should find out. This mom found a medicine through her own research that stopped her daughters seizures. Maybe it's tme to dry my tears and fight for my son and for all of the other sons and daughters out there whose lives have been changed by this mysterious disease  I'm not well known and my husband is not one of Obama's chief strategists, but I think I want this as bad as she did. Now..............How do I get started? LOL.