I would like to recommend After Her Brain Broke: Helping My Daughter Recover Her Sanity by Susan Inman. She describes her battle as a mother to help her daughter with schizoaffective disorder. It is a very moving and helpful book recommended by Fuller Torrey. There is a very good review of it at http://blogcritics.org/books/article/book-review-after-her-brain-broke/
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Have you read "Surviving Schizophrenia" by E. Fuller Torrey? It is helpful to families when they are first confronted with the disease, as well as those who have been floundering within the system for years.
Thank you for your recommendation -- I'm not familiar with the book you mention.