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Sunday, October, 12, 2008

Daily Bread 1/08 - a Difficult Subject

by  DCROY9633
Tuesday, January 08, 2008
DCROY9633
DCROY9633
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Age 50.  Diagnosed at age 37, after many years of...

DCROY9633

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The difficult subject is: how do I keep on taking Zyprexa when the side effects are such a daily drain on my body.  It is so sedating and has caused me to gain a great deal of weight.  I think it is horrible.  Yet it is the only antipsychotic that works for me.  (I have tried m...

  1. A Difficult Subject
    bretsch
    Tuesday, January 08, 2008 at 10:28 PM

    Hi

    You definitely should continue to take your medication.  I went through the same reasoning.  I know about the side effects and the pain and impatience and yes denial. My friend saved me by keeping at me until I agreed to take my medication.

    I amdoing the same for you.  Consider a newer antipsychotic with less side effects like weight gain and sedation.  And have patience!

     

    bretsch

     


    reply
    re: A Difficult Subject
    DCROY9633
    Wednesday, January 09, 2008 at 08:57 AM

    Thank you for your reply, Bretsch.  I would like to switch to another antipsychotic but I have tried some of the older ones and all of the newer ones and only Zyprexa is effective against my symptoms.  I know I have to live with the side effects, but I just have not reconciled myself to that fact yet.  It is a daily struggle for me.  I hate my life being taken over by fatigue and sleepiness most of the time; I hate going on a binge in the middle of the night for no reason other than I feel I am starving.  But then I remember the ECT treatments that didn't work, all the times I was hospitalized, two doctors telling my parents I should be "put away" in a state hospital, and then I realize how fortunate I am to have an antipsychotic that works.

     

    My therapist once said, "Look around you.  God made people in all shapes and sizes.  Some smaller, some larger.  Is any one a better person because of their size?"  And of course I had to answer, "No."  I want to be healthy and am afraid of diabetes.  I want to live a full and fulfilling life.  But I guess maybe Zyprexa is letting me get as close to that as possible.

     

    Carolyn


    reply
  2. Meds or Not
    daolotusbear
    Wednesday, January 09, 2008 at 01:39 AM

    Meds or Not

     

    I have been taking a combination of drugs for the past eight years with relative success. Risperdal and Paxil were my first medications. The Risperdal took away all feelings and made me very focused with a side effect of extreme weight gain and subsequently diabetes. Before Risperdal my mood swings were exaggerated from low to high; with auditory hallucinations running my life. I was violent and destructive; having little or no friendships as I was a loner and an introvert.

    I have had the hallucination and voices since I was three; never being diagnosed until I was forty. Suffering from drug an alcohol addictions made it doubly difficult to live a sane life; self medicating was a fact of my existence. I smoked three packs of cigarettes a day; quitting four years before I was diagnosed. This habit left me with emphysema.

    After three years of Risperdal and Paxil I changed to Geodon and Welbutrin; still living with the side effects of weight gain but recovered emotions. I am able to live well enough that my moods no longer run my life.

    I have been in a twelve-step program for the past twenty five years and have found the benefits in keeping engaged with people by going to a meeting on a daily basis. I found that the meetings help me stay out of my head and help me connect with others as a way of healing. I also live a spiritual lifestyle cultivating Dao through prayer, meditation and working with others.

    As for the overeating, I can't control the medication side effects but I can control what I eat. Eating fruits and vegetables, nuts and grains, chicken and fish and cutting out red meat as a primary source of protein has made it possible for me to control my weight gain. When I am hungry I used to eat fatty, sugary foods that promoted bad health. Now I eat lots of salads and drink vegetable juice and fruit juices to detoxify my liver and give me lots of fiber.

    I have learned that I can live in fear or live in love. Living in fear makes me digest bad food that gives me mood swings and disempowers me by pushing me into despair. Living in love, promotes loving things that effect my health in a positive empowering way.

    Combining acts of service with others, asking for help, letting the spirit in and being loving to myself through positive eating habits I gain power over the side effects of the medication. I am no longer powerless and at the clutches of my illness.

    It's easy to throw up my hands and drop to my knees in despair. With the support of a power greater then myself I can manage my life successfully.


    reply
    re: Meds or Not
    DCROY9633
    Wednesday, January 09, 2008 at 08:59 AM

    Thank you for your thoughtful reply, Daolotusbear.  Are you Buddhist?  Are there any food restrictions for Buddhists?

     

    So far I have not had the courage to face obesity, which is where I am now.  Sometimes I feel I should embrace it and let my fears go.

     

    Carolyn


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    re: re: Meds or Not
    daolotusbear
    Wednesday, January 09, 2008 at 12:47 PM

    Many Buddists are vegitarian I am not. There is a twelve step program called Overeaters Anonymous. You might check your local listings for a contact number near you. The courage comes from acceptence and then surrendering to a power greater than myself. In this case, the people in Overeaters Anonymous will become a power greater than myself. After I got used to the people then I was able to accept a higher power into my life as a way of change.

    I am Dao not Buddhist, by the way. If you want to read about what Dao is, google Daolotusbear for my blog.


    reply
  3. Difficult Subject
    Christina Bruni
    Wednesday, January 09, 2008 at 01:33 PM

    Hello Carolyn,

     

    Have you tried Geodon, too?

     

    Also keep the hope up that a newer drug could come on the market shortly, one that works better than the Zyprexa.

     

    It is never too late to make a change.

     

    I was on Stelazine for 20 years before it stopped working, someone I know is still on Navane.

     

    I will ask my friend who is on Zyprexa how she deals with the weight gain, and get back to you.

     

    Regards,

    Chris


    reply
    re: Difficult Subject
    DCROY9633
    Wednesday, January 09, 2008 at 03:42 PM

    I have tried Geodon, Abilify, Risperdal, Clozaril, Seroquel, Trilafon and Zyprexa.  Plus many other mood stabilizers and antidepressants. Seroquel worked for 2 yrs then stopped.  Abilify and Geodon made me extremely agitated.  The others didn't help or the side effects were too bad.  I do hope a new antipsychotic comes out on the market soon.  I couldn't take Invega because it is a metabolite of Risperdal and my pdoc said it would have the same side effects.

     

    I would gladly try anything that would let me lead as normal a little as possible, although I doubt I will ever be "my old self" again.  I do not have delusions of complete normality!! I would like to be able to work again and socialize more.  I would like to have my creativity back.  But everyone in this world must adjust to life's changes and challenges.  I'm glad to have a place to live and family members who love me and care.

     

    Carolyn


    reply
  4. Combo of drugs?
    Pamela Wagner
    Saturday, January 12, 2008 at 08:10 PM

    Hi Carolyn,

     

    I had the same problem as you do on Zyprexa, and could not in fact tolerate it after many many tries, though I was on it for years. I finally tried Abilify. It worked, in that my symptoms were treated successfully enough, but it was extremely agitating, made me very irritable...until  we combined it with a calming drug, which in my case was Geodon, but in your case might be something else. Have you tried a combination of antipsychotics or does your psychiatrist insist on monotherapy? I have only had success with polypharmacy; nothing else has worked. It took us five years to work out the combination of drugs I am currently on, tweaking this and that, but we did, and I have been quite well for months now, really for two years, despite a couple of relapses due to extreme stress. (See my profile for the present combination of drugs I'm on if interested.)

     

    Disclaimer: I too have stopped the very minor dose of Zyprexa I was taking, a mere 2.5 mg, basically because I believe I do not need it and it was making me gain weight even so. I think stopping that amount (I once took 40mg) I do not risk a relapse, only minor discomfort that I can easily remedy with a PRN of Haldol from time to time if necessary...However, I do know that I might be in some unknown and unpredictable danger of relapse even so, I just don't happen to think so.

     

    Pamwagg 


    reply
    re: Combo of drugs?
    DCROY9633
    Sunday, January 13, 2008 at 08:49 AM

    Thank you Pam W. By the way, I enjoy your poetry. My pdoc is reluctant to try polypharmacy. I would like to try Abilify or Geodon with an antianxiety med, but he says, "No."  I have thought of switching doctors -- I am well on my way to getting diabetes.  But my current pdoc is so willing to help with SSDI and insurance paperwork, and some are not.  Plus he takes Medicare.

     

    I, too, took 40mg of Zyprexa for several years and gained almost 100 lbs within the first few months.  So there was the double-whammy of sedation and incredible appetite.  Now I make my own adjustments between 2.5mg and 20mg, according to what breakthrough symptoms I may be having.

     

    As I have quoted at times, "damned if you do, damned if you don't."  And it is sometimes a process of going for "the lesser of 2 evils."

     

    Carolyn


    reply

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