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I need some guidance please!!

By Deanna Durr Tuesday, November 27, 2007

 

Long story short... I am a very close friend of a 35 year old man with Schizophrenia.  He has suffered with the disease since his early twenties.  He has been medicated for the last 10 years (Zyprexa, only helped ease suicidal thoughts, but brought on paranoia and delusions of grandeur).  This last March, he was finally hospitalized for first time and started on Abilify.  This med worked wonders and it was nice to have him stablized and functioning again.  However, he stopped taking it and approx. three weeks ago was showing signs of trancelike behavior and talking about the delusions again.

 

I took him to the psychiatric hospital in my area on 11/15/07 and he is still there.  They have started him on Invega (very new anti-psychotic) and Wellbutrin.  I visit him almost daily and have noticed no improvement whatsoever.  The delusions are in full force and he is unable to take care of his own hygiene. 

 

Also, he entered the hospital voluntarily, but I have since petitioned to have him there involuntarily because he was unwilling to take on a case worker and I don't want him to leave. The hospital will hold him for a maximum of 90 days, and I am currently looking for a long term AFC to take him. 

 

Questions: 

 

The doc insists on continuing the Invega, but I am confused as to why they wouldn't try the Abilify again if it worked so well earlier this year?

 

Are there any sort of support groups (online or off) that I can get in touch with?  This is all new to me (as his mother was dealing with all of this up until a few months ago).  It is so heartbreaking and emotionally draining and I would love to have contact with others who have been through or are experiencing the same.

 

Thank you so much!!

 

DLC

 

 

 

 

Christina Bruni, Health Guide
11/29/07 1:38pm

Hello Deeneld,

 

Contact the National Alliance on Mental Illness:  1 (800) 950 NAMI (6264).

 

They will refer you to a support group in your area, for you to go to as someone affected by a loved one's illness.  You don't necessarily need to be a family member, just that someone you care about has a mental illness.

 

This hotline number may also advise you how to talk to the doctors in the hospital, without breaking confidentiality.  Try to voice your concerns with them.  Do you have an idea why your friend went off the medication even though it was working?

 

I feel you need to voice your concerns to the doctors.

 

Regards,

Christina

12/16/07 9:21pm

I have been medicated, mostly with Zyprexa, for about 12 yrs.  It does work well for me.  But I have taken myself off of it many times.  The thing is, once I start feeling better, I either deduce I must be well, or that I simply no longer need the medication and "test" myself by noncompliance to see if it is true.  Sometimes I decide I was probably never sick in the first place -- it was a mistaken diagnosis.  No one understands this, not even me. 

 

At first, I hated psychiatric hospitals.  They seemed like only more torture added to my days.  I even had electroconvulsive therapy many times to try to break the hold the illness had on me.  I attempted suicide a few times.  Gradually, I became grateful for a safe place to be.  I knew they would take good care of me and keep me from hurting myself or others.

 

Finally, in 2002 my psychiatrist came into my hospital room and said, "I'm going to lay it on the line.  If you don't start taking your medications as prescribed, you are going to continue to go straight downhill.  You will never get any better.  And in a few years you will be totally dependent on others for your simplest needs and care."  Well, that scared me.  That was not what I wanted.  So for a long time, I did take the meds as prescribed.  I hated the weight gain and sedation (and still do.)  Now, occasionally I go off the Zyprexa on my own again.  I soon feel the symptoms coming back and start taking it again.  A rollercoaster that is surely hell for my brain, as if it has not been insulted enough already by the illness itself.

 

I think you are doing right by keeping your friend hospitalized until he is stabilized on medication and understands that he must take it to be allowed back into society.  And he hopefully will like the part about feeling so much better and decide it is the right thing to do.

 

Best wishes to you.

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By Deanna Durr— Last Modified: 09/18/10, First Published: 11/27/07