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21 Year old son wont get diagnosed-affraid he's suicidal!

By Concerned Mom Monday, November 29, 2010

We've always struggled with our sons hearing loss and Auditory Processing Disorder.  He'd been in "special education classes" all of his life.  Knowing we would need to really help him for his future, we always focused on his physical health.  Hoping he would "catch up".  Just a couple of months ago, he went off the deep end.  We knew right then that he was experiancing schizophrenic episodes after looking it up online.  From taking down mirors in the house because he thought there were hidden cameras - and the rapper M&M was stealing his "moves" and ideas and using them in his videos.  These strange episodes lasted for about a week.  We couldnt convince him to go in for help.  We live in California - and apparently cant get him committed.  If he's not hurting others or himself at the time- and doesnt agree to get help- we're stuck.

He says he "likes how he feels".  He stays up late at night - sometimes walking all night and coming home to sleep during the day.  He had a small stock that was supose to be set up for his future.  Has a credit card (no job) - he's taken out all his stock and closed his Facebook account, spending his credit card on beer and cigarettes.  Says he has no friends and that no one cares/loves him.  (far from the truth!).  I've been on the phone with mental health facility and last night called a suicide hotline. 
Bottom line, if he doesnt have a gun to his head - they wont come in and take him.  Meanwhile we're all on pins and needles wondering what he's planning.  He says he has nothing to live for.  We keep an eye on him, but am so affraid he's going to leave and we'll never find him.  Or he will end up killing himself.  What can we do if we live in a state that wont take a mothers word- he is going to hurt himself - I know my son!  He's dropping hints, but wont come out and say he's going to kill himself or how.  "But that one day soon something big will happen and everyone will know him"...

What's even harder, is trying to explain to the grandparents that we ARE doing what ever we can - which seems like nothing - since we can't get him in for help!  Calling 800 numbers - asking for help.  My hands are tied.  I could of done a better job than the young girl I talked to on the suicide hotline I called last night.  she was really no help at all.....I'm frustrated at the system and need some way to get my son help - Maybe lying and saying he's been specific and said he really would hurt himself.  But when they do come in and "evaluate" him - they will ask him - and if he says he's fine, they'll leave him and wont bring him in.

Christina Bruni, Health Guide
11/29/10 7:04pm

Hello Concerned Mom,

 

You have learned firsthand about the failure of commitment laws that is not unique to California, every state in America denies people who need mental health treatment the services they need because of the idea that they are not a threat to themselves or others.  Then the people who are turned away decompensate further and harm themselves or others.

 

Self-medicating his symptoms with alcohol is a no-win situation as you are well aware.  He will start to walk all over you shortly because I know you do not want him to stop living in your house.  I often tell parents they need to set house rules when they allow adult children who have schizophrenia to live with them.  In the extreme parents fear their son or daughter will become homeless or kill themselves or others if the parents don't watch over them.

 

In the end, Arthur and Marian Bellucci paid the price with their lives for doing exactly that: letting their son live at home when he was violent and suicidal.  If you read my recent SharePost Schizophrenia and Violence: Debating the Latest News you would be aware of this high-profile crime.

 

Using alcohol and drugs could raise the risk of violence in someone who has schizophrenia.  And your son's continued use of alcohol will virtually guarantee he doesn't recover from his schizophrenia.

 

So many Moms and parents like you write in with this same fear and frustration.  You will have to deal with the repercussions of whatever action you take.  I cannot tell you what to do however I can indeed suggest lying to the staff as an option to get your son treatment.

 

Why?  I can tell you that if you are not concerned about your safety now you might wind up being concerned about it in the future if he continues to abuse alcohol.  So on that pretext alone I see it as being reasonable to protect yourself now.  Fear for your safety I feel would warrant that the staff take action.

 

Read up on the suicide warning signs and responses to suicide threats.

 

You can deal with the fall-out and with your son's reaction if he is forced to be hospitalized.  Some parents write in that they fear betraying their son or daughter's trust.  Better to take action now and deal with the consequences later.

 

Your local NAMI chapter will have family support meetings where you can go to talk with other family members who can give you advice about this situation as well.  Most of them have been in this predicament at some point too.  Ring the National Alliance on Mental Illness at (800) 950-NAMI (6264) to find the name and phone number of your local chapter.

 

Tomorrow morning I will ring the executive director of my local NAMI to ask her what else you could do.  I get this same plight as yours written about by so many people that I want to come up with some more suggestions.

 

Right now though I will leave you with this: lying might be your own option.  Or at least telling your son that if he wants to live at home he has to see a doctor.

 

Stay tuned soon as I will post a second response tomorrow morning after I speak with the woman at NAMI.  I would like to hear her advice based on her years of leading the family support groups there.

 

Regards,

Christina

Christina Bruni, Health Guide
11/30/10 11:32am

Hello Concerned Mom,

 

The executive director of NAMI-Staten Island spoke with me today about this situation and gave me some suggestions I will tell you-and others who will undoubtedly have the same experiences writing in in the future.

 

She said that a lot of communities have a CPEP-comprehensive psychiatric emergency program.  At least: there is one on Staten Island, a borough of New York City.

 

She suggested getting to know the staff at the emergency room.  You should tell the staff your loved one is suicidal.

 

She sometimes calls the CPEP on behalf of NAMI-Staten Island members herself.  You can find the name and number of your local NAMI by calling (800) 950-NAMI (6264).  Your local chapter's executive director might also be able to act on your behalf.

 

You can also do something proactive if you need to call the cops.  Before they arrive at your house prepare them in advance on the phone by saying something like this: "My son is suicidal, he has a mental illness and is not taking meds.  However we do not have any guns in the house, there are no guns."

 

This sets the police up not to shoot your son first and ask questions later.  The cops will still come prepared to defend themselves however you must tell them in advance there are no guns in the house.

 

The next level of activity would be to get a judge to legally require your son to be in treatment and on medication.  In New York State this law is called Kendra's Law.  In Florida I believe it's called the Baker Act.  Whatever law is in place in your state your local NAMI chapter will help you get the ball rolling to have it enacted.

 

The last suggestion oftens leaves a feeling of ill-will all around.  It is to get a mental health warrant against your son.  Most families don't like to do that because of the bad feeling it leaves their loved one.  You get the warrant.  Your son gets a lawyer.  You get your own lawyer.  Everyone on both sides appears in court before a judge to state their case.  The judge decides whether the loved one will be legally required to get treatment.

 

So those are some ideas the executive director gave me.  Whatever option you choose to go the main thing is to play up to the staff and judge the fact that your son is suicidal because in this case he would be a danger to himself and need treatment.

 

Regards,

Christina

12/ 1/10 1:16pm

Thank you so much for the quick reply and valuable resources.  I will keep you all posted on progress.  There has to be some type of law to help with people like ourselves who are trying to find a way to save our loved ones.  Is anything being done?  I know when my grandmother was mentally ill, probably in the 60's and 70's she was institutionalized.  Then (I think) when Reagan was in office- they changed the laws for the better, but seems like a little loop hole for the people that need to get help.

 

Since my last message we noticed that he acts up when he sits on the computer all night looking and fantasizing about "changing the weather" and other odd behaviors.  my husband is now limiting him on how much computer time he has and removed "you tube video access".  This helps my son go to bed and get the appropriate sleep.  I will sit down with my husband and figure out a way to incorporate a doctor visit...stay tuned.  

 

Thanks again and will reach out to the resources this week.

12/22/10 2:59pm

I've previously written about my 21 year old sons schizophrenia problems. 
I've tried to communicate with my husband on how we need to be on the same page and work together. 

  My husband won't read up or go with me to talk to councelors or go to meetings with others in a similar situation.  He works the night shift and expects me to handle everything - when things are "off" with my son my husband doesn't treat him with respect.  He belittles him and calls him names and yells.  He's frustrated and acts as if my son can control what he's been doing.  (my son can't help it) so the whole family seems to gang up on me - expecting me to be able to call the police and have my son removed and evaulated.  I've tried to explain that if he's not harming or violent that the authorities can't help.  (I'm trying to get through this Holiday season.)  I cry alot and dont want to call family members - and involve them.  They too have a hard time understanding and I dont want to ruin their Holiday.     I am angry at my husband for the way he treats me and my son.  But mostly - I see that he needs help/counceling to understand what is going on with our son.  He stays in bed all day on his days off.  When he does get up - he's yelling at me and the family.  He puts all the blame on me.  Last night he told me "it's your fault our son has this problem, and my fault our other son (17 year old) has type 1 diabetes.  (I have a cousin with diabetes and my grandmother had mental problems - but his sister also has schizophrenia also).  I never blame his side of the family.  that's not fair.  My son was born with many medical problems and had learning difficulties and hearing loss with auditory processing disorders.  So the odds have been against him since he was born.  I feel bad.  I'm tired and am so worried.  Most of all I want my son back - healthy as ever and happy....

 

Christina Bruni, Health Guide
1/18/11 3:23pm

I hope your fellow NAMI members at the support group can give you additonal feedback about how to get your husband involved and on your son's recovery team.  His critical tone towards your son will hamper your son's recovery and indeed might cause your son to relapse.  I'm sure you don't want to hear this.  And my suggesting you speak to a therapist might not be the answer you would like to hear although it seems some kind of family counseling is in order

 

I give you credit and respect you in what you are going through.  I know it isn't easy to do this all on your own.

 

Regards,

Christina

1/19/11 4:09pm

Thank you for your reply. Alot has happened since my last post. Last week my son was acting out. Long story short- he became very upset that I would not understand or believe that the moon was following him.  I said "I believe that you believe it" and that made him so upset that he said if I dont believe him he would shoot or hang himself.  I knew then, that I either had to call 911 and forcefully get him help or somehow get him to go in willingly.  He agreed go to the hospital if he could get an x ray or scan to see where the microchip was in his body.  He believed the government was watching him.

He was in the hospital for 6 days and is on 3 different medications.  He is now at home- refusing to go to the outpatient programs.  He still gets upset that I "put him in the hospital" but deep down I think he knew it was for the better. 

My next step is to sign my family up for a "Family to Family" program - apparently there is a waiting list.  And hopefully not a long wait.  I doubt my husband will be willing to go.  But I will make sure myself and other two sons atleast can attend - ask questions and help them understand what's happening to their brother.

  My husband and I are not speaking to one another.  We dont do well in crisis mode.  I try to handle things best I can on my own since he's never home, he tries to intervene with no education or conversations with doctors.  It's very frustrating when he wants to help - but doesnt "get it".  He lashes out on me telling me our son is like this becuase of me. 

 

I plan to attend drop in meetings this week - with other families with the same problems. 

I will keep working with NAMI.  thank you for your help.

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By Concerned Mom— Last Modified: 01/19/11, First Published: 11/29/10