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Monday, April 06, 2009 angelpunky asks

Q: What in the world?!

My boyfriend and I have been together for almost a year and he has SZ. He has only been hospitalized once earlier on when he first was diagnosed 8 years ago. However, his family did not encourage him to move forward with his life, so he has practically been sitting in his room for the past 8 years.

 

Since we have been together, I have encouraged him to go back to work (which is going very well)and he is about to go back and complete college and get his degree. We are even discussing marriage. Unfortunately, I have gotten some resistance and had some issues with his family. They say that they are happy that he is getting his life back together and that I am helping him, but it's happening too fast. 

 

His mother believes that he is only pretending to be improving and that he isn't the same person when he is around me that he is with them. She believes that he is good at "hiding".  She says he's not 'normal' and he will never be normal and both he and I need to accept it. As our relationship has been progressing, he has been spending more and more time with me and I don't think he is pretending at all, nor does my family members. I know he is not 100%, but I don't think he is the person that she is making him out to be.

 

I have been blamed for hurting some members of his family by what I am trying to do and the way I am doing it. I don't know what to do.  I don't want to be the bad guy, but I don't want to give up on him either.  It is not always easy coping with his condition and his family is not making it any easier.  Any words of encouragement or advice from anyone out there?  I could really use it.

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Answers (2)
Christina Bruni, Health Guide
4/ 7/09 10:00am

Hello angelpunky,

 

I feel for you.  Stigma is a term used to describe the outright discrimination, stereotyping, or ill will that other members of society harbor against people with SZ.  It is possible his family has bought into this myth that people with SZ are hopeless and helpless and don't deserve to better themselves.

 

It appears to me that your love and respect for your boyfriend boosts him up.  With compassion and empathy shown to us, people with SZ can and do get better.  I am a woman with a Masters degree and a professional job as a librarian, and I obtained my degree and my job AFTER getting sick.  So all these things are possible for your boyfriend if he stays in treatment, takes his meds, and works on being involved in positive, healthy relationships like the one he has with you.

 

As someone diagnosed with SZ, I can tell you my life and what I go through isn't easy. I soldier on because I believe in my vision that people can recover, and so I aim to be a messenger of hope to everyone I meet.  I know other people with SZ who get married, some of them even risk having kids [SZ has a genetic component].

 

One thing you could do is work on the relationship before committing to marriage, if you weren't sure about marrying him.  As for his parents and family members, like with anyone who has the disease called stigma, they will come around slowly and maybe not ever, when it comes to accepting that he is a successful individual who is a person first with a personality and traits all his own, NOT a sick person to be identified by his symptoms.

 

I have been out of the hospital 17 years, employed for 19 years, and will be moving into a new apartment in June.  I'm at a loss as to what you can say to "convince" his family that he is a fully-functioning member of society, just like anyone.  The fact that you say they tell him he's "not normal" gives me the idea that their stigma is deep-rooted and will be hard to change.  I was lucky that my mother drove me right away to the hospital when I first got sick, and she never abandoned me or treated me differently.

 

I feel the bottom line is, your boyfriend needs love and support from the people who are in his life, and since it will be hard for him to get respect from his family, he may have to make some tough choices.  I am hesitant to suggest he break away or see them only at holidays.  The choice is his to make.  However, when your parents don't encourage you to get better, that's not the kind of environment conducive to enabling a person to recover.

 

Like I said, people with SZ can and do recover all the time.

 

Regards,

Christina

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4/ 7/09 9:27am

I have SZA. I'm married. My wife and I get along well, without my family interfering. Family issues are huge concern. If his family is "holding" him down they are doing him a disservice. They are hurting him more than you ever will. Your love for him is all that matters. In any marriage there are family issues. The intention of his family is to protect him. That isn't happening. I would say, and this is my opinion, follow your heart.

 

I wish you and your boyfriend the very best.

 

Sincerely,

 

Dave

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By angelpunky— Last Modified: 11/10/10, First Published: 04/06/09