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Friday, July 03, 2009 Daleri, Community Member, asks

Q: How many people are there that have recovered from sz?

This is a nice website. I would like to know how many people have recovered without medications. The medications seem to be used more as a tool of control rather than a cure. I would like to know if a diagnosed full blown sz with sights and sounds is known to have made a complete recovery.

 

Thank you,

 

Daleri

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Answers (9)
Christina Bruni, Health Guide
7/ 3/09 9:59pm

Hello Daleri,

 

I was diagnosed with SZ in 1987 and I have made a full recovery because of the medication.  If you actually had ragin', full-on psychosis, I doubt you would welcome that mental state and refuse the medication that could give you your life back.  The medication is NOT a "tool of control" and I know that because I take one of the medications.  I'm not sure if you were diagnosed with SZ.  If you were not, how can you presume that the medication is a tool of control?  People looking at the situation from the outside often have no idea what goes on.  Hopefully by reading the SharePosts here, and reading my Profile and the Profiles of everyone else, you will see that recovery is possible even if there's no "cure."

 

Because, Daleri, the Geodon was as close to a cure as I could get; and I submit that's all that matters: I recovered.

 

The reality is, 95 percent or more of the people diagnosed with SZ need medication in order to have the best possible chance of recovery.  Only about one percent have a single psychotic episode and never have one again and don't need medication.

 

So instead of using the absence of medication as the Holy Grail for determining whether someone is cured or recovered, look to the statistics and body of evidence here and elsewhere that show recovery is not only possible, it's probable when one stays in treatment.

 

Had you not suggested that the medication is used as tool of control, I wouldn't have come on so strong.

 

Regards,

Christina

Reply
Daleri, Community Member
7/ 3/09 10:39pm
I am not trying to be offensive and sometimes it seems a bit of control is needed but I don't see how it can ever be a cure. It doesn't make sense to me. Diabetics are OK as long as they take insulin but they are not cured. If I am in error I hope you allow me that grace for me to error long enough for me to be able to see what is wrong with my reasoning. It also does not bother me if you want to say you have recovered. That is a great aspiration to have. I am not judging anyone here and I don't have the pay grade to make a determination of who should take what or how much. I am just trying to get some answers and perhaps help someone along the way. Reply
nadia, Community Member
12/ 8/09 7:37pm

Dear Daleri !My grenfather hed sz for12 years Hi wasmentali insane and dangerous,wanted to strangle people after 12 yr in mental hospita he had come hom comlpetly healthy,never take any tablets for the rest of his life My father also had sz and it did disapired after 14 yr..just disapired They are being treated with shock pherapybyt it did not helped I am slightli dilusional if I do not take Solian minimum dosage But I do expect it to disapire one day as it did in the case of grenfather and father Iam not go in any church but I do reade Bible and believe that God PUTS SICKNESISS ON HUMANS IT IS SAID IN DEUTORONOMI AND NUMBERS DESCRIBING MADNESS the Christianity is fake and they do not have gifts of healing I have done research on it but the God is real. Best wishes and my God grant you mercy the same way he did to my father and grenfather

Reply
nadia, Community Member
12/ 8/09 7:37pm

Dear Daleri !My grenfather hed sz for12 years Hi wasmentali insane and dangerous,wanted to strangle people after 12 yr in mental hospita he had come hom comlpetly healthy,never take any tablets for the rest of his life My father also had sz and it did disapired after 14 yr..just disapired They are being treated with shock pherapybyt it did not helped I am slightli dilusional if I do not take Solian minimum dosage But I do expect it to disapire one day as it did in the case of grenfather and father Iam not go in any church but I do reade Bible and believe that God PUTS SICKNESISS ON HUMANS IT IS SAID IN DEUTORONOMI AND NUMBERS DESCRIBING MADNESS the Christianity is fake and they do not have gifts of healing I have done research on it but the God is real. Best wishes and my God grant you mercy the same way he did to my father and grenfather

Reply
David Robbins, Community Member
7/ 3/09 5:19am

There is no cure for SZ. I imagine there are some that have overcome it. I don't know though.

 

 For me, taking meds IS a tool for control. I cannot live without meds.

 

I hope you find answers.

 

Dave

Reply
Daleri, Community Member
7/ 3/09 5:25am
Thank you for your reply. That is what I am trying to find out if there are any known cases of people that have been cured. I am interested in what the experts will say. Reply
JULIE LEDFORD, Community Member
9/16/09 10:20am

CLOZARIL / CLOZAPINE

STOPED EVERY ISSUE MY MOTHER HAD WITH HER SCHIZOPHRENIA

IT TOOK A LONG TIME TO FIGGURE OUT THE RIGHT MEDICATION  FOR HER AND EVEN LONGER TO FIND THE RIGHT DOSE.

THIS MEDICATION NEEDS TO BE WATCHED OVER VERY CLOSE BY A DOCTOR

AS THERE ARE A LOT OF DANGERS.

BUT I NOW HAVE MY MOTHER BACK IN EVERY WAY SHAPE AND FORM.

IF YOU NEED HELP OR HAVE QUSTIONS PLEASE CALL ME ANY TIME

810 412 4293 JULIE LEDFORD

Reply
ranarohit, Community Member
5/ 9/11 12:06am

Iam Rohit , my daughter had been suffering from Schizo prenia from last six year

 

she under medial care but i want her to recover at her maximam lavel. pl. guide

 

 

Reply
Donna-1, Community Member
7/ 3/09 5:53pm

From what I have read, a small percentage of people who have been diagnosed with sz only have the initial psychotic break and go on to fully recover w/o meds.  But the vast majority of us require medication every day in order to keep our heads above water.

 

Carolyn

Reply
Daleri, Community Member
7/ 3/09 7:11pm

It is likely there are some people that keep it a secret. A lot of people joke about it. They say things like, "It is alright to talk to yourself or to God as long as you don't hear someone talk back". That is a bit of a dilemma but for all (or most) intents and purposes, it is better to just ignore anything like that (unless it is God talking to you). Oh, the perils of the mind. What God says is supposed to be true and what szs see and hear is not true or dependable and therefore, not good (not what God is saying) because it is not true since it is not dependable. What gives a lie or image its power is if or when people believe in it. Otherwise it would be powerless. We need to believe (and fear) good will happen instead of bad.

Reply
Christina Bruni, Health Guide
7/ 3/09 10:12pm

Hello Daleri,

 

Perhaps you didn't mean "tool of control" as defined by the common, anti-psychiatry belief that medication is mind control, used to keep people in line if they don't conform.

 

That is how I interpreted your use of "tool of control": the way it is commonly used- to infer mind control.

 

Please define what you mean by "tool of control."  It is possible you merely meant "as a tool of controlling symptoms."  If this is what you meant, it's true that medication is often the only way to control the symptoms.

 

However, I consider the Geodon, quite frankly, to be nearly a cure.

 

Regards,

Christina

Reply
Daleri, Community Member
7/ 3/09 10:51pm
Yeah, that is what I meant that medication is a tool of controlling symptoms so that people don't hurt themselves. My concern is the actual cause especially for people that previously did not show any symptoms and perhaps even for those children who seem to be born with it. Reply
devguru2014, Community Member
7/12/14 6:15pm

Dear Christina,

 

Your posting about recovery is giving some hope. Can you please clarify whether you are able to do normal job and lead a normal life? Sorry if I sound like I am getting into your personal life details. My brother was diagnosed of Schizophrenia in 1993. He looks so much better now though he is still on some meds. He seems to have overcome the "positive" signs like hallucinations but he still seems to have those "negative" signs like dull voice, non-social etc., All that I hope for is for him to be able to wake up every day go out(for a gym, meet friends, attend some courses) and return home and lead normal life. My dream is to see him work(he completed his engineering from a reputed school, unfortunately he got this issue in his final year and did manage to graduate). Is there any light at the end of the tunnel or is this what life will always be for him?

Reply
sunfire, Community Member
7/ 4/09 3:57am
For alot of people on antipsychotics it is extremely hard to quit taking the meds the meds are extremly addictive and when some one decides to stop the meds the person will puke hurt all over and sometimes hallutionate. becuase they are so addictive people withdraw and the withdrawal looks so much like a relapse to everybody cause of the hallutionations etc that the person is not allowed to stay off of the med. This experience was from someone who had been on the meds 15 year and tried to come off. However I know another person who has had a similar problem they had the same experience although they had'nt been on them 15 yr. Sometimes doctors change meds to often too when someone starts doing better their meds get changed thats kindof silly to me but theirs nothing I can do but suggest to them a different doctor. Reply
Daleri, Community Member
7/ 4/09 7:12am
Thank you for your response. There are websites that claim a high recovery rate among people that are affected by sz. I would like to know of any documented examples of that. If what you say is true, it doesn't seem like that is even possible. Reply
Christina Bruni, Health Guide
7/ 4/09 1:06pm

Hi Daleri,

 

Here's a link to studies documenting recovery:

 

http://www.namiscc.org/newsletters/September/Recovery%20from%20Schizophrenia.htm

 

Regards,

Christina

Reply
Daleri, Community Member
7/ 6/09 2:10am

I checked out the web page that you gave. I had seen it before and I read it again. My friend that was affected by sz no longer shows and of the symptoms of sz and was never treated, no more ups and downs, no more hallucinations or imaginary friends, no longer speaking irrational things, no more noises, no more unexplained terror etc.. He wasn't a perfect person before he flipped out. After, he tried to change everything he was doing and he tried to always do the right thing and that seems to be what made the difference. The thing that seems to have turned the tide was when he stopped believing in the hallucinations. The hallucinations would vanish the moment that he stopped believing in them. They just kept vanishing until they never came back. So it turns out that the cause could have been faulty reasoning in the first place. No one is able to think for anyone else and doesn't know the errors and false assumptions that other people have and no one can correct the thoughts or fears that other people have. Each person has to do that for themselves.

Reply
sunfire, Community Member
7/ 5/09 8:13pm

There are people who have recovered! The problem alot of people face is the withdrawal period. In the withdrawal period some people who does not realize that there is a withdrawal period believe the person is relapsing an push the person withdrawing into taking medication. This is a problem for  people who would like to go without meds. It is hard for anyone who has been on antipsycotics to quit taking them if they have been on them awhile and but it has and can be done. Some people because of stigma (false beliefs) think that people with schizophrenia should not be allowed to make their own decisions about not taking meds and force them to go back on the medication. Some people who are withdrawing want to go back on the meds cause they are tired of pukeing, upset stomachs, body aches, and sleep hallutionations and people assumin that they are relapsing that they decide to go back on meds. Although some doctors are ignorant and help the family force the person to go back on meds.  Some doctors also claim that their is no withdrawal period however that is a lie that is why it is dangerous for any ones meds to be changed or taken away quickly cause of the dangers of seizures, and sometimes death. BUT there have been people who have succeeded. HOpe this helps some. ALSO NAMI may be willing to help they are the national alliance for the mentally ill. Good luck and God bless you

Reply
Daleri, Community Member
7/ 6/09 12:56am

Thank you for the clarification. It is the kind of information that I was looking for. I suppose that just because we can put someone on medication doesn't necessarily mean that we should. There are extreme cases where perhaps medication can be used to minimize the symptoms and the violent nature that some people have but if the person is not violent and not a danger to themselves or others, perhaps some good TLC and counseling would be in order. They wanted to put my friend on medication even though he had not even hurt or threatened anyone. The irronic thing is that violence is often learned from others and is sometimes not even related to sz.

Reply
JULIE LEDFORD, Community Member
9/16/09 10:18am

CLOZARIL / CLOZAPINE

STOPED EVERY ISSUE MY MOTHER HAD WITH HER SCHIZOPHRENIA

IT TOOK A LONG TIME TO FIGGURE OUT THE RIGHT MEDICATION  FOR HER AND EVEN LONGER TO FIND THE RIGHT DOSE.

THIS MEDICATION NEEDS TO BE WATCHED OVER VERY CLOSE BY A DOCTOR

AS THERE ARE A LOT OF DANGERS.

BUT I NOW HAVE MY MOTHER BACK IN EVERY WAY SHAPE AND FORM.

IF YOU NEED HELP OR HAVE QUSTIONS PLEASE CALL ME ANY TIME

810 412 4293 JULIE LEDFORD

Reply
Christina Bruni, Health Guide
12/ 8/09 8:45pm

Julie Ledford:

 

Please delete your phone number from your comment.


It is in violation of the SZ Connection guidelines.

 

Regards,

Christina

Reply
ranarohit, Community Member
5/ 9/11 1:05am

ear madam,

 

I will be highly grateful, to help me out to recover from sz, my 18 yr. daughter Richa diagonosed sz in yr 2005 she is uder medication and pchychiatric care under on of the best doctor in india. pl guide show the parh way for the recovery of sz.

 

Regards

 

Rohit Rana

 

email ranar47@rediffmail.com Tel. 919717738359

Reply
DrWatson, Community Member
11/20/10 6:33pm

It appears there is a great deal of misunderstanding regarding Sz here.  Prior to the introduction of psychotropic medications, the vast majority of people recovered from Sz.  Psychotropic mediations may in fact control symptoms; however, it comes with the price of greater super-sensitivity to developing and maintaining Sz due to the upregulation of the neurotransmitter system.  Likewise, misinformation is given to the patient about success rates (i.e. being told it is life long, due to genetics/brain pathology/chemical imbalance/etc...) which also causes psychological harm and lowers one's ability to fullly recover.  There are more than a dozen long term studies looking at sucess rates of those who take medications and those who do not...head to head...and the peer reviewed data on this is quite clear:  See www.abcmedsfree.com  for a great summary of this data, just look under diaganosis.  Each study can also be found at www.psychrights.org in it's entirity.  Lastly, anyone who is interested in Sz should join www.isps.org as this professional organization does nothing but look at how people develop such dysfunction and how they over come it.

 

Kindly,
Dr. Toby Watson, PsyD

Clinical and Doctoral Training Director

Associated Psychological Health Services

 

International Center for the Study of Psychiatry and Psychology, Inc.

International Executive Director  www.icsppOnline.org

 

Reply
mike, Community Member
12/ 3/10 7:41pm

Yeah, I mean, I'm going to give my 2 cents here, take it how you will.  Schizophrenia is NOT A DISEASE.  Schizophrenia is merely a name misappropriately given to the collection of symptoms that people exhibit and experience when their brains make a decision to "rewrite the brain's hard drive".  Let me explain.  Before an individual hits "adulthood"(around 10-13?),  that individual is subject to be influenced by their parents.  This "coding" from their parents exists in almost all people in america, if not the world.  However, for some people, that coding is too extreme, and in some instances, the brain may realize that that coding is detrimental to its(the individuals) existence.  The brain will then destroy all that coding. During that process, the individual will undergo a lot of EXTRANEOUS symptoms that are what psychologists have observed to be schizophrenia.  Eventually, the process will be complete and the person will no longer have those symptoms, however they will no longer have that "childhood coding" so that person will no longer have the same misinformation that they did pre-schizophrenia.  HOWEVER, this uncoded psyche is not complete because actually the brain needs a slight amount of coding to co-exist in this world so during that minor re-coding process of a tiny bit, the person will once again exhibit symptoms of schizophrenia - this is what is referred to by psychologists as relapses.  After the person's brain has coded itself, the person will be completely symptom free, for as far as I can tell, forever, because the human brain is very very smart. 

 

Now, as far as the drugs go, or even the treatments, I am not sure of the effect they have but it would seem based on what I have read and seen that the drugs definately, and possibly any psychological counseling, have an EXTREMELY ADVERSE effect on prolonging or even preventing the individuals recovery.

 

Listen people - your brain is very very smart.  It made a conscious decision to heal you - let it run its course.

 

Also, I am not a psychologist, so if any psychologists who are curious as to more information about this, feel free to reply, I will try to answer all questions.

Reply
rolyat182003, Community Member
4/11/12 10:42pm

Thanks so much for your post.  I was diagnosed nearly 20 years ago with paranoid schizophrenia.  I always suspected something like you reported was really going on but I never heard it put into words.  I am in the process of weening myself off the meds I've been on for so long because I seriously think I don't need them anymore.  The more urgent symptoms of my particular case have completely gone and the only thing that I can point to that still would be considered a symptom is when I get in a crowd, I still think I have conversations through thought broadcasting with other people.  This, I suspect, will probably never go away but that's like a light cool breeze compared with the mental Hurricane Katrina of my first years after diagnosis.  I figured out through severe withdrawal effects listed in some of the earlier posts that I had to gradually come off the meds.  I'm now two months into the dosage decrease and I still feel fine.  In fact I have more energy and clarity of thought.  Frankly, I am afraid of severe resistance from certain parties who might try and force me back on the meds after so much progress, but I'm hoping, because I don't know, that they have no legal power.  Just as a sidenote, I was once put in a straightjacket and injected with Haldol which I clearly stated on thousands of medical examinations that I was allergic to.  It was listed in my chart, sure enough, when they checked so they injected me with cogentin to counteract it before my throat closed up.  At the time, I was psychotic and wound up setting the building on fire using a juice lid and an electrical outlet.  Anyhoo, thanks for this post.  I hope to give supporting evidence for your theory in about a year when no one can dispute my recovery. 

Reply
Glori T., Community Member
1/14/11 7:48am

Well, I wanna say there is in fact no scientific way to cure sz yet, unfortunately.  I do believe people can be healed by faith in Jesus name though.  I know this because I'm one of them.  After being diagnosed in 2003, I went through the full blown illness and I hope I can get to tell you more in the near future.  After medications plus in and out of facilities, through the power of prayer, fast, supplication and thanksgiving and of course, God's timing, I have been healed!  I am looking for other people like me. My mind has been renewed.  After being told I would be on meds all my life. I have been med free for nearly six years.  I dont recommend anyone to get off there meds without their docs advise.  I am just telling you my case. Not completely sure yet why God chose me, I'm sure there's gotta be a purpose.  I have been sz free since 2004 and everyday amazed.  I hope this piece of my story can open your mind up to other possibilities: the Healing POwer of Jesus.

 

God Bless,

Glori

Reply
ranarohit, Community Member
5/ 9/11 1:01am

 dear madam,

 

I will be  highly grateful, to help me out to recover from sz, my 18 yr. daughter Richa diagonosed sz in yr 2005 she is uder medication and pchychiatric care under on of the best doctor in india. pl guide show the parh way for the recovery of sz.

 

Regards

 

Rohit Rana

 

email ranar47@rediffmail.com  Tel. 919717738359

Reply
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By Daleri, Community Member— Last Modified: 07/12/14, First Published: 07/03/09