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Sunday, January 03, 2010 Little Lizzy asks

Q: Financial help for caregiver of paranoid schizophrenia

My husband was diagnosed 6 years ago with paranoid schizophrenia.  I have had to quit my job in order to care for him.  His disability payments are not enough to pay all the bills.  If I leave him for any length of time he is continually calling to see when I am coming home.  This has caused me to loose my jobs.

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Answers (3)
Christina Bruni, Health Guide
1/ 7/10 10:37pm

Hello Little Lizzy,

 

You are going through a lot right now.

 

Given that you might not live in New York City or thereabouts, try searching on this 211 Link.  Many cities in the U.S. have a 211 phone number (in New York City it is 311) that you can call to find out about government and possibly other services.

 

Also: I understand that you might not want to do this however if you are eligible for subsidies like food stamps you might want to take advantage of them, as well as a food pantry, so that you can free up cash to pay some of the bills.

 

The respite care services that abcd mentioned might be a good way for you to see if you can schedule a part-time job during the hours you husband has a PCA.

 

I also wonder-and this might be a stretch-if there is a Meals-on Wheels type service in your community specifically for disabled or low-income individuals that can provide meals so that you can cut down on grocery bills and free up cash that way.

 

Also: in New York City Verizon (when it was called NYNEX) used to have a service called LifeLine where it would only bill people collecting disability checks $2.50 per month for phone service.  It's worth looking into if the utilitiy companies in your area also offer these reduced fees for services.  One service in NYC for low-income households was HEAP-Heating and Energy Assistance Program.

 

Regards,

Christina

Reply
1/ 3/10 6:40pm

You can also apply for res-hab for him. (Medicaid Waiver Services) There are a great many agencies who do this. And you can apply to as many as you want, because some agencies have a slot available sooner than others. These agencies can also offer you Respite Services.

 

If you live in New York, one very large and excellent agency is SKIP of New York. (it is not only for children, but for disabled adults as well) Phone: 1 (212) 268-5999. They are extremely friendly and helpful (my own personal experience). Tell them you wish to apply for Res-Hab and Respite for your husband. The application process is simple and short and can be done over the phone.

 

Once your husband gets a "slot" a certain number of weekly hours will be aloted him, year-round. A worker will come to your home to be with your husband and care for him during those hours, and give you some much needed relief.

 

You can also apply for a PCA for your husband. That's a Personal Care Assistant. This service is given by the city, and is a long application, and quite a long wait, but well worth it. At the end of the process a worker will be be aloted to your husband on a daily basis for most or all days of the week, year-round, for a certain amount of daily hours. (Usually 4 hours per day)

 

There are also quite a number of Reimbursment programs. Usually for up to $500 per year each. One is OMRDD, another good one is Center for Family Support, and Evelyn Dougllin (718) 965-1998, all in New York. These programs will reimburse you for care-giver services (if you hire someone to occasionally care for your husband), and for certain other goods and services you've paid for.

Reply
1/ 3/10 6:47pm

The phone to apply for a PCA: (718) 250 5624.

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By Little Lizzy— Last Modified: 10/26/11, First Published: 01/03/10