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Saturday, June 28, 2008 Carla asks

Q: What antipsychotic drugs have less side effects? Been on all kinds.

My son is 15.  Been diagnosed as schoziprenic for 1 year.  Been on Abilify, Invega, Respidol, Zyprexa, and now Geodon, which put him in the ER today because of muscles seizing up in his respiratory tract and eyes turned up completely in sockets.  We are at our wits end.  We have to coax him into taking his meds and he just agreed to try to Geodon, and now this.  Is there anything out there that don't have all these side effects?

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Answers (6)
6/29/08 7:52pm

Hello Carla,

 

I am sorry about the side effects your son has been experiencing.

 

The good news is (reading between the lines) it seems like your son is otherwise stable and has responded well to the meds except for the side effects.

 

Though I am not a doctor, and I don't treat medical conditions or diagnose people, I will tell you my story; I was on Stelazine for 20 years, a traditional neuroleptic, not an atypical.  There are other drugs out there and don't give up, try all the keys on the chain to see which one unlocks the door, as the saying goes. 

 

You do not say what the side effects were, and whether the side effects were something that, if all else failed, your son could live with until a new drug comes on the market.  Please do not take this last sentence as critical.  I say it only because a lot of times with things like dry mouth, a patient will want to change drugs, when there are over-the-counter supplements that can counter dry mouth but he or she doesn't know about them.  Not all side effects are created equal, and hopefully your son's doctor explored every angle when it came to managing the side effects.

 

You did tell us the side effect of the Geodon, though, and that is of course not acceptable.

 

I urge you to work with your son's doctor to try every new drug as it comes on the market, and also to consider a traditional neuroleptic instead of an atypical.

 

Only you can make that decision in consult with the doctor, though.

 

Again, as I tell everyone I respond to, I hope you find some relief and that it works out.

 

Best regards,

Chri

 

 

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8/18/08 9:14pm

Have you tried seroquel?  It has a very low eps rate.

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10/21/08 10:07am

what type of doctor do i need for schizophrenia

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3/ 1/09 5:56pm

I have taken Geodon and Abilify and it made me feel strange and even a lot worse i believe. I believe they made me more hyperactive mentally in some way. Depakote and Seroquel have worked very well for me, it definately helps balance out mental activity.

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8/24/10 2:43pm

I suffer from severe bi-polar type 2, depression, anxiety, mild aggressive episodes (more or less in your face arguments -- no physical danger),  OCD, and dyslexia.  At least that's all they have labeled me to date.  Due to all these problems, I think you can see that I do not get along well with others and therefore, I do not have a large or even small support group.


However,  as long as I am home, I am reasonably happy.  My home is a mess.  I have on going projects that will probably never get completed.  And except for my significant other, no visitors.  I have had a low-level, ongoing migraine that occasionally flairs into the incapacitating state that last for days/weeks, along with the occasional, restless-leg syndrome.  All this in addition to lupus, high blood pressure, high cholesterol, heart problems, poor circulation, gosh, the list goes on.  But you get the picture. This slew of physical health related issues demands medication.  I have worked with my doctor and take only those medications that I absolutely have to and for the shortest times absolutely necessary.  


I am no doctor and I do not advise others to follow my example.  However, even with all the above, I can safely make the follow statement: taking no anti-psychotic medications at all is far superior for my mental and physical well-being than taking the drug induced, side effects laden, pharmaceutical cocktail that doctors prescribe for me."


While it is true that I live at home, with my significant other without company, I do live.  I do not interact well with others, and I can deal with that.  No Problem.  Certainly I have bouts and episodes that I fight my way through.  But I come out the other side.  Me!  Not some drug-induced, comatose, outline with all my normal problems plus all the problems created by anti-psychotic meds.


The pharmaceuticals have the same effect that aspirin has on me.  For example:  I have a headache.  I take an aspirin.  It eases the headache somewhat, but gives me a horrible stomach ache.  I take stomach medicine.  The stomach problem moves to the background with the headache.  But oh, the diarrhea that occurs is almost unimaginable.  I take a diarrhea medication, that gives me a migraine headache.  The circle continues.  Never-ending.  For this reason, I don't take an aspirin immediately when I get a headache.  Most of the time, it does not bloom into a migraine, because I am careful not to eat or drink anything that induces migraines.  If it becomes absolutely unbearable, I take a baby aspirin, and hope that I do not have to take another.


It is for the same reasons I do not take anti-psycotics.  I cannot and will not live my life, it you want to call it living, in side-effects hell, or dead to the world in bed for weeks or months on end.  I am not a physical danger to others.  I am not a physical danger to myself.  I say things occasionally, the few times a year I am in public, that seems to fall outside the norm of how others speak.  I can live with the dead silences that occur.  And the sometimes, loud disagreements that occur when others decide to correct my wayward manner of thinking.


I cannot live without me!

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8/24/10 2:49pm

Sorry, failed to include all my response.  The remainer is continued below.

 

Now let me be clear, if there were a miracle pill, that didn't have the side effects attached that would aid me to be the best that I could be and move me into the realm of what others think of as acceptable, while still allowing me to be me, then I might consider it.  However,  I am retired (after being gainfully employed, even with all my problems, for over 35 years).  So, at this point in my life, screw it!  Others will just have to deal with me, or not as they choose.  I can deal with myself.  


I know that the doctors who prescribed all those different medications through all the years of my life meant well.  Their goal was to make me better.  I know that the drugs did not do it.  I sincerely tried.  I just gave up.  And in doing so, I have found my peace with myself


So for those who can live with themselves and take care of themselves and their homes: (all-be-it surrounded by the never-ending projects and lack of external support and the roller coaster ups and downs of their illness), and for those who can feel as "themselves" as I do,  consider:  Just how well are you really doing on all those medications that do not "cure" you, that do not "ease your pain", that  simply bring more problems to the mix of episodes that you continue to suffer in addition to the so called "cures"?  My episodes come, but they will go.  I contend with them with what little strength I have...for on the meds I had no strength at all.


God bless you all; those who can; those who can't; and those who spend ever day in pain and agony as they search for relief.  Whatever path you choose, I hope you find what you need to survive with dignity and the strength to carry on.  Regardless of wither or not others find you as "normal" or "acceptable".  Find yourself that way.  Find Yourself.

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12/25/10 4:33pm

I agree with David's comment below "Seroqual" is best I've found, I was diagnosed Schizophenic 2005. I have tried the entire gammet of med's out there, & ALL except this one have had either really annoying or debilitating side-effects. There is NO agitation, it is also a relaxent/calmer. Must be taken at night/little groggy during morning, but NO uncomfortable, uneasy' feeling with this drug - at least for me anyhow. I wish you the best of luck, I've been there - I understand the frustration! Kind regards, Adrian ;)

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2/27/11 3:45pm

hi carla, this sounds a really difficult time for yoour son and all your family i do know of one antipsyciotic that has been really good for a friend of mine called quetiapine 300 mg taken at night before bed the side effects they get is sleepiness and feeling really drunk my friend at one point was givn a higher dose which she was unable to tolarate as it made her feel very nauseus maybe you could ask about this medication on your sons next appointment but the only draw back to all medication it has different effects on different people but with what you have said i am sure it is worth ago

hope this has helped in some way

 

nic

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