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Sunday, November 08, 2009 pearsontj asks

Q: Inpatient commitment vs Homecare schizophrenic?

Inpatient treatment vs Homecare

  My son was involuntarily committed due to an incident at school.  This is his first mental break so; the mental health system & TDO's are new to our familiy.  I do not feel that being "locked-up" with strangers and removed from anything or anyone familiar is helping him. 

    Is it totally unrealistic for me to want to care for him at home?  I just feel like him being at home in a familiar setting with all the item he uses to self comfort (like his guitars & cello; music in general) will make the wait for the meds to kick in as lot less traumatic.

    Any advice?? Opinions??

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Answers (3)
11/ 8/09 9:30pm

Hello,

 

My belief is that a long-term hospitalization is not the answer unless the person needs to be there to control the symptoms when they are at their most severe.

 

You should while he is in the hospital be visiting him regularly (my mother came to visit me every day).  Develop a relationship with the staff and make it a point to be vocal so that they know he has an ally and advocate in you for his treatment.

 

Ask them about his progress; ask them about his discharge date.  Talk to your son about what's going on and how he feels.  Develop a relationship of trust with your son.

 

I also believe that if a person is actively psychotic he or she needs to be in a hospital.  Maybe you can bring his guitar to the hospital for him to play there.  Bring him magazines and books to read.  Give him a notebook or hardbound journal; it might help if he kept a journa.

 

Tell him you love him and will be there for him and you will work together with him so that he can get well.

 

Your son can get better.  He can recover.  You write that this is his "first break" and I want to assure you that it is possible it could turn out to be his only break.  That will be determined by whether he commits to his recovery, continues to take his medication, and, after he gets out of the hospital, finds something productive to do during the day rather than sitting on the couch watching TV.

 

So recovery is possible.  It isn't quick and it isn't easy.  Yet it is possible.

 

If he needs to be in the hospital, try to visit him every day and get involved in his treatment.  Make sure he has a psychiatrist to see when he is discharged into the community.

 

Regards,

Christina

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11/ 9/09 11:52am

Christina

   Thanks for the reply.  All great advice.  Unfortunately this treatment center won't let him have any instruments or even his ipod at any time.  I would love to visit him everyday even more than once a day.  But this they only allow visits on sun-mon an they take up part of our visits with family therapy instead of scheduling therapy during non-visit hours.  The lack of contact is very frustrating.  For example: we drive 1.5hrs one way to get to the treatment center.  We were there to see magistrate this am and they wouldn't let talk or have any form of contact with our son after the hearing because it wasn't designated visiting time.  Whatever!!!!!!!!!!

  

I hope and pray that he will recover and that this will be his last break (with reality). 

   

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11/ 8/09 3:07pm

Oh I feel for you..I really do...I am not at all in the position to answer you question here...I am also a mother with a son recently diagnosed with schizophrenia...He is older though..he is 40 years old and he was also mentaly impaired due to epilepsy since he was a child..The only thing I can tell you is this...I take care of my sons every need these past few months at home..I have watched over him and taken care of him all of his life..HE IS MY LIFE !!..And I would rather mysef be gone than to ever face having him institutionalized...He means too much to me...But that is me...Myself and his Father have had to come to terms with an awful lot since July when all of a sudden out of the blue..Our son was gone from us as we knew him...It was like he had become someone else...His temperment is different..we have had to secure our home so he can't get out and gone from us as he had told us he wanted out..He talks to all the voices he hears...He ignores us most of the time because he looks out only for the need of his voices...He was never ever a problemfor us growing up..He was too good !!!..I have to see to all his personal hygiene needs also...I could not stand for strangers in a strange place taking care of him...He is currently taking ativan to keep his temper down and enables us to give him his medicine he needs daily for seizure control and also he was taking Risperdal..But his doc said at 4mg daily that was enough and it was not working...Now the past week he has been taking Zyprexa instead...I myself don't think that is goinjg to work either as seems he has become more depressed and also more frustrated with us...I have faced the fact that he probably will never be without those voices that are running his life..Mostly because of his already mental disorder..If he were normal and had a sharp mind then as I have been reading he could maybe control the voices by shutting them out..I ma deeply depressed over all of this..I have lost my intrest in all..And I am serious about that..But I will continue to care for John as long as I can...I hope that I haven't bored you or scared you in anyway by going on and on..I suppose that I also am looking for answers...And looking to share things with others that are going through the same..Please feel free to write me if you like...I have found here that there are so many who are willing and able to help you sort through some of this..God bless you and your Son..... Gail

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11/ 9/09 4:55am

Gail

   Thank you for responding.  Sometimes it helps to know you're not alone.  It doesn't matter how old or young your child is he's still your child!  You are living my biggest fear: that I have lost my son and that someone else is living in his body.  But I HAVE to believe that my son is still in there some where and that he knows I love him.  I too have never loved anyone or anything as much as my son.  He has always been a joy to me.  He is such a sweet; sensitive and smart kid.  He doesn't deserve this.  NOONE deserves this!

 

   The hardest part is the total loss of control over my son.  Not because of his behavior but because the staff of the psych unit has almost totally cut me out.  I can only visit him on certain days of the week for short periods of time and only under supervision.  And if my son acts the least bit aggitated they end the visit immediately and then we have to wait 2 days before we can see him again.  We can only call once during a set 2 hour period of time each day  for an alotted 10 mns and if he is asleep they won't even wake him and ask if he wants to come to phone & talk to us.  So then it's another 24 hours before we are allowed to attempt to have contact with him.  That is SO HARD!

 

     We have to go before the magistrate this moring to determine the length of his commiment but I'm told it's just proforma and that the judge is just going to do what ever the facility says and we are only being allowed to attend as a "curtousy".  So it might be another two weeks or more before he is allowed to come home. 

    My days and nights are spent looking at the clock calculating how much longer before I can try to have some sort of contact with him again.  It is absolute torture but I am trying to keep strong.

 

    Although it must be both physically and mentally exhausting caring for your son and trying to keep him safe 24/7; I envy you.  There may come day when you have no choice but to admit him but I hope not. You are blessed to have him with you.  My life is on hold just waiting for the day I can get my son back home.  Please add us to your prayers and I will pray for our family as well.

Thanks so much for sharing; Terri.

 

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11/ 9/09 5:06pm

You don't say exactly what the "incident" at school was.  Was your son violent?  Talking back to voices?  A risk to himself or others?  All in all, if this was his first experience with psychosis or schizophrenia I believe it is excellent that he is receiving treatment/medication, even if hospitalization is not your first choice.  The earlier a person is treated for sz, the better his chances for a positive outcome, i.e., recovery.  Note that I don't say "cure."  You son will probably always have to take medication for this illness, just as diabetics usually have to take insulin for the rest of their lives.  But there certainly is no shame in that.  Just hope that he agrees to take the medication once he is home -- that can sometimes be a real problem.

 

I was hospitalized for the first time in 1995.  It was in a city some distance from my family, so my sister and her son were the only ones who visited consistently.   I was 37 at the time.  My symptoms came on slowly over years before I had an actual psychotic break.  At first I hated the hospital and all the staff there.  I told them to go to hell.  I ended up hospitalized 18 times at a number of different facilities because either the meds weren't working or I wasn't taking them as prescribed.  It took me until 2002 to realize that I was sick and out of control.  And when I began to take Zyprexa, I began to recover.  Yes, my weight doubled.  Yes, I often slept 14-16 hrs a day.  At first.  Over time, my body began to adjust and my weight stabilized and I was able to stay awake longer.  Now, I realize that the sleep may have been necessary for my mind and body to recover.

 

But, during the first two years after diagnosis, I attempted suicide 3 times.  I needed hospitalization, even if I resented being there at the time.  But now I know I was safe from myself there.  It may be a good thing for your son to be where he is watched constantly and where someone is sure he is taking his meds every day.  Don't be in a big hurry to have him back home.  There will be time enough for that in the days to come.

 

The good news: It has been 14 years since I was diagnosed and the last year or two I have recovered significantly.  I am now able to have my own apartment, after living with my parents for years.  I am able to live on Social Security disability payments and a disability pension plan I had paid into at a prevoius employer.

 

I am feeling better now than ever before.  Even pre-diagnosis.  There is hope for your son -- medication, support, his own courage, and constantly working toward recovery.  Don't expect him to be his "old self" any time soon, sad to say.  But be there for him when possible.  It will take a family effort.  Best wishes to you.

 

Carolyn

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11/ 9/09 10:09pm

Carolyn

    Thank you.  You said things I need to hear.  This has all been such a shock.  At school my son decided that a girl who was no more than a casual friend was his wife and that God had picked her for him.  He was violent or physical in anyway but stalked her to the point that she became fearful (not good).  As I learn more about sz I realize my son is lucky to get the treatment he's getting instead of in the criminal justice system.     

     I cruised the web last night & today looking for info on how to get him out; all I found were people frustrated because they can't get the help he's getting for their family member.  That was a real reality check.

    I have kinda come to the realization that me wanting him home has as much or more to do with my needs than his.  Oh well I'm only human.  It has really helped that I was able to visit him today and that he seemed a little better.  Still delusional but at least he was happy to see me and he had more expression on his face.  It was a balm for my soul. 

    The more I read I am gaining an enormous respect for people living with sz.  What courage to live your life and come out of it not only fuctional & independent; but also ready to help others.  Thank you!  Thank you! Thank you!

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11/ 9/09 10:15pm

P.S. I ment to say is wasn't violent.

 

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5/23/11 7:34pm

Does anyone know of a inpatient facility in Long Island that treats paranoid schizonphrenia?  I am trying to help a young friend 23 yo find an inpatient facility for her 50 year old Mom who has attempted suicide a couple of time in the last few months. Any advice is welcome and appreciated.

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