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Thursday, October 15, 2009 Sarah M. asks

Q: Dual Diagnosis/possible mistreatment.

I have been living with dignosis of Schizophrenia,& had been seeing a doctor that i thought cared about me for the past 15 years. However, i also believe that i was sexually abused by both of my parents. (eg's.-my mother, during a fit of frustration, while I was in the 6th grade gave me french kisses, while she attacked me for not "cleaning-up" the bathroom,&;then my father gave me very little privacy as a teen,[as i was shuffled between the two after a "quiet divorve when i was smaller] {Such as, making me leave the only bathroom door open, while changing my pads during menustration]&; he made sexual suggestions either to me or in front of me to my Step-mom, also he and my step-mother showered with me up until I was 14,ect.). I have started telling some of my friends,(during the past 10 years) and then i became brave enough to bring it up to my doctor, hoping for some relief from my feelings of guilt/confusion and anger,however her response was less than good. She said,"Well,if your NOT lying to me, then Yes you MAY HAVE been touched inappropatley, but i cannot say that you were molested, furthermore;if you say anything else that may lead me to believe that you/someone else may have commited a crime..." I was floored!!!-So, Not only did I feel brushed off, but it was obvious that she didn't believe a word that I said, and it was so hard for me to tell her! Is it because I have a diagnosis of schizophrenia that I can no longer be belived and my memories are considered hallucinations or false? I KNOW what happened to me, and I can't get her or any other doctor in the facilty to treat me for what I believe is post trumatic stress disorder. I have changed doctor's, but am forced to remain at the same clinic (because I am on Medicade;& have little other choice) and my new Doctor has the same attitude about it, probably because she is his boss.(She is the top pyschatrist at the center where I go) I feel like i really am "putting them out" by bringing it up again. What should i do? Is this ingnorance acceptable/legal? Is there a "reason" that I am missing? I think "Talk Therapy" is crucial to my mental health right now,and i KNOW I am just being handed a script with no hope of theapy. I have even been told,"you don't qualify", or "We dont have the means to give you theapy"; I think I am being denied treatment because i have a diagnosis of SZ & I am poor. Do you know what i should do about this? ---Suffering at Suncoast Center, Florida. Sarah M. Ps-I was so upset by this situation that I also wrote to the Department of Health, here in Florida (a similar letter to this one), not only that, I know the clinic may be repramanding because of the "stone walling" behavior that I am experiencing at this clinic, since this situation. My old doctor even called me shortly after I wrote the letter to the State & and asked me if "I was suing her" -what do you think of this?-is this professional/legal? I thought it was my right to file a complaint in the U.S.& not be reprimanded for it? I keep finding out the hard way "that no-one cares "-As my Father would say.Thanks for any advice.-Sarah

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Answers (2)
Christina Bruni, Health Guide
10/15/09 9:09pm

Hello Sarah M,

 

I couldn't have said it better than abcd: threaten to sue or actually sue.

 

It is entirely too real that people with schizophrenia are not taken seriously by doctors.

 

I have a friend who was a CEO of a company, who has SZ, who went to a doctor when he first moved into the new area to see about being a patient.  When he told the psychiatrist he had been the CEO of a company, the doctor told him he shouldn't make up a story like that just because he felt poorly about having SZ.

 

Moral of these too-often heard stories: the people who are entrusted to care for us often don't believe we're capable of much and have a dim view of us.

 

Go to the Legal Aid society in your city or town and get help now.

 

You are not alone.  We will support you.  What you have gone through growing up was real abuse.  We believe your story and we want you to get help so that you can get the right treatment.

 

Be brave.  It will not be easy.  Only silence is not an option.

 

Regards,

Christina

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10/15/09 9:45pm

Hi Chistina, you are a sufferer of SZ too, I read. Yes, That situation happened to me today! I needed to get some records from an eye doctor that I had years ago, and there it was in his notes"psychotic schizophrenia"

Now WHY would an Eye Doctor need to make a note like that? Because if I go blind and sue him ---he has a defense? (I also have macular degeneration which i must keep tabs on.) I never behaved out of sinc at all with him at all! He guessed at that because of my medications, (maybe i just wont tell doctors what I am on anymore, they obviously can't handle the information!)> or my mother said something (was years ago, & I needed his notes for a new doctor i am seeing), which, by the way, she likes to do, because she gets alot of sympathy for it, and it makes her feel in control of HER life, but that is another story.

YellThis stuff makes me so mad, but i feel so helpless, does Nami have advocates that can help me to make this world understand SZ suffers aren't crazy, they are different---they all think i am vilolent! His note said,"Psychotic< SZ, not just SZ! The doctors are the ones that need the help! aghhhhh :O !-Sarah M.-I think I will write him a letter.

 

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10/15/09 11:41am

Hello there,

 

I am so sorry for what has happened to you. You not only have the hardship of illness and poverty, but the misfortune of dealing with unkind, uncaring and unprofessional doctors...

 

It is indeed a sorry statement on our society when someone helpless, poor and alone is treated as you have been.

 

My advice to you is as follows:

 

1) Go to the emergency room of a really good hospital. Tell the triage nurse you are having an emergency situation and say you must immediately see a psyciatrist. (You must exaggerate to the nurse, unfortunately, but you are doing this for a good and justified cause)

 

Tell the psyciatrist what has happened to you. That is why you must go to a first class hospital. A really good doctor will not only listen to you but help you. Make sure to ask him for the written copy of your evaluation. (So that you can show this to others if it becomes neccessary.

 

2) Do you have a Res-Hab Coordinator? If not apply for one. One very good agency is SKIP Phone: 1 (212) 268-5999 (there are many such agencies and you can look them up on a computer or phone directory) They have very sympathetic workers at SKIP and will surely be glad to help.

 

3) As for your old doctor, if she contacts you again, DO say you are suing!!! And perhaps consider doing so. Her conduct to you was not only unkind and unprofessional but probably illegal... This doctor sounds like a total disgrace!!

 

You would be eligible for free legal assistance from any number of public agencies that give free legal aid for people who have disabilities and cannot afford a lawyer. You can also look these up on the computer or call the Bar Association for some names of agencies and numbers.

 

It is very sad to say, but through my own personal experience, I can tell you that if you show weakness or indecision before unscrupulous people or agencies, they will surely take advantage of you and beat you down.

 

Show assertivness and strength with people such as the ones you describe. Make sure they understand they will be in legal trouble if they don't treat you properly. (Even if you don't intend to go to court in the end) Such people will always be looking after their own interests, so that if they belive you will cause them some professional damage, they will back off...

 

So sorry to hear of your trouble, may better fortune and better people come your way...

 

Something i read in the Book of Psalms comes to mind:

 

"May i fall in the hands of G-d, for his mercies are many, and may i not fall in the hands of a man..."

 

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10/15/09 9:22pm

Thank-You for your response. I am glad someone cared enough to write, I will try the numbers but as far as going to a hospital, that sounds to scary. I don't want to meet another bad doctor & then have him commit me!

I think I will just have to fire this new doctor too or demand that he treats me, and if he cannot do that then he can get me a referral to another doctor. If that does not work-(since he does sign my scripts for clozeril, & knows I am being stonewalled at Suncoast) then I will rty and leave Suncoast all together, but it doesnt seem possible...I'll have to call my general practionor, who KNOWS Dr. Leffler, and ask her for a psychatric referal. The thing is, with Medicade---you get the crapest doctors, because no-one in thier right mind would pay to be treated like a "callous on a heel" or someone to be silenced and hidden from society... With healthcare in America, the way it is, the poorest persons are really getting the shaft, esp. in Florida.(a federally> broke State) . I just want someone I can talk too, and they keep telling me,"No, there is no-one." However I don't believe that at all, I think there are people, but when the head doctor gets Paranoid becasue you wrote the State, they aren't going to treat you well, because they have been told that you are a problem patient.  Do any of you out there know how I should proceede other than this? Should I sue? How? these companies have big lawyers...??? Thank-you all for any responses.

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10/16/09 9:14am

Hello again Sarah,

 

i just wanted to add a little note to what you wrote.

 

You know, eventhough big agencies do have lawyers and seemingly all odds on their sides, it doesn't mean you won't win if you go to court!!! On the contrary, in my opinion you have presented the facts and your case very well indeed.

 

Let me tell you something. I went to court alone against the Dept. of Education approximately 7 years ago on behalf of my child. The Dept. of Ed. also has great lawyers etc. on their side. I was told not to do it and that i would never win. I was threatened and coerced, but went anyway. And, guess what, i won..

 

Since then i went to court 6 (!!) additional times to court (against the Dept. of Ed.) and won every time! They no longer laugh at me, but are afraid of me...

 

The key, i believe, is to pray and then present your case in a clear detailed manner. I think you have done a very good job of that. Your story does sound completely truthful. i believe a judge will listen to you and take your case seriously. I think you can easily win in court. You shouldn't take this sitting down quietly...

 

As for your parents, if they can be called by that name at all, their conduct is an even greater disgrace!!! It is simply shocking! Instead of protecting and supporting you they have betrayed you... And are still doing so.. More shame to them... Perhaps they are the cause of your sz. Sometimes when a person can't deal with the reality they find themselves in, and are so taumatized they seek a separate reality in order to survive... Your parents are criminals... Much worse than a murderer. A murderer only kills a person once, and your abusive parents killed you over and over for many years...

 

Lastly, you should keep your medical condition as private as possible. I don't have sz, but have an adult son and mother with sz, and i keep this information secret...

 

It is very sad, but stigma and prejudice regarding mental illness is very much the rule rather than the exception. Don't tell people unless you must. You need to build a wall of protection around you. Don't forget prayer; it is both powerful and valuble. And it does help. Every time before one of my court proceedings i used to pray.

 

I believe your words, as does Christina. Rest assured, others will to. You just had the grave misfortune to find yourself most of your life, and even today, around negative, selfish and plainly unethical people.

 

May peace and comfort come your way..

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By Sarah M.— Last Modified: 12/01/10, First Published: 10/15/09