Saturday, November 29, 2014

Symptoms

Living with Metastatic Melanoma

By Eileen Bailey, Health Guide Wednesday, December 26, 2012

A diagnosis of metastatic melanoma is devastating news. The 10 year survival rate is less than 10 percent. [1] Recent treatments have given hope, doubling the life expectancy of some patients. [2]  research is ongoing with scientists searching for more answers, more treatments and better outcomes.

 

And there are survivors. On the AIM for Melanoma site, one such survivor, Deborah Shemesh writes, “I was 26 when I was diagnosed with Stage III. By the time I was 32, it was Stage IV. Last rites were given several times. I am now 58; 32 years since diagnosis, 12 years of spontaneous remission. I encourage others to be inspired through finding success stories. I hope my story is used to inspire others. Sharing brings me great happiness and I know that in order to heal, happiness is a key ingredient. Happiness heals.” [3]

 

Another 34 + year survivor, Kenneth Shapiro, wrote a blog up until his death in October 2012. His battle with metastatic melanoma began when he was in his 30’s. He died of kidney cancer 34 years later. He writes, “There have been many off the wall theories about why I am alive but the only thing that seems to be constant is that no one really knows…I learned early on that the individual has to be involved and totally aware of what is going on and why…I believe that the individual has to be the main focus of the therapy. The medical side cannot do it without the help of the individual and the individual cannot do it without the medical side…Knowledge is the cancer patient’s greatest ally and a belief in what you are doing regardless of what anyone else says.” [4]

 

Being Involved in Your Treatment


When you receive a diagnosis of cancer, your mind spins, you feel like you are out of control, you can’t think straight. And yet, you need information and you need to make decisions. While you may need to decide on treatment options quickly, you usually don’t need to do so within minutes of hearing your diagnosis.

 

Set a time to talk with your doctor. Bring your spouse, partner or a trusted family member with you; someone who will be able to help you understand and remember your options. Ask questions about anything you don’t understand as well as what to expect – both in increasing life expectancy and side effects. Once you have a list of your doctor’s recommended treatment, do your research. Ask your doctor for reputable websites, books and other educational materials to help you understand your cancer and your options.

 

After you have decided on a course of treatment, keep apprised of what is going on. Continue to ask questions about anything you don’t understand and what treatments are available as a secondary course of action.

 

Nutrition


Eating right during your treatment and in developing a survivorship plan. Some treatments will cause decreased appetite, nausea and abdominal pain may interfere with your ability to eat. Breaking meals down and eating smaller meals throughout the day may help. You may also find that eating with friends, in a more social and enjoyable setting can help increase your appetite. Talk to your doctor about what foods are best to eat both during your treatment and after it has ended.

By Eileen Bailey, Health Guide— Last Modified: 12/26/12, First Published: 12/26/12