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The diagnosis of psoriasis can be emotionally devastating for patients who must struggle to cope with this chronic skin disease. Psoriasis is not contagious so you don't "catch" psoriasis like the flu. This is due to the fact that psoriasis is an autoimmune disease. What happens wit...
While I don't have Psoriasis, I can empathize with those you do suffer any skin disorder. Acne alone made me aware long ago and wishing there was something which worked to relieve a young teenager.
So I'm interested in knowing whether any members have tried this new treatment or found something which could be of use to others. There hasn't been too much activity here, questions unanswered. Perhaps that will change and members should try to answer questions from other members if they can help. Support of that kind is invaluable.
Hi Curious
Psychologically, it is a humbling disease and it gives a very clear interpretation to the word "dis - ease". However, it is not a death sentence and there are many worse ailments to suffer from. Generally I find it is the less educated people that display an almost primitive inquisitiveness which leads to what can not even be interpreted compassionless but a basic lack of emotional & social skills. Over the years (18 years) I have learnt I don't need to respond in any way to their enquiries.
PUVA WORKS. I have had many, many treatments over the years - my body is about 70% covered in psoriasis, a little inheritance from both my parents.... The side effects are not pleasant, I feel extremely nauseus and always develop itchiness, sunburn (about 4 sessions in) and flu like symptoms when undergoing treatment. I dropped the Methotrexate and only used the lights which worked for me. Still sunburn & itchiness, nausea is a constant.
My father has also tried PUVA and felt it made him too sick to continue, so he never went back to it.
My son was diagnosed with hypogammaglobinaemia and needed monthly infusions (polygam) after 19 months of infusions he developed a severe reaction to the drug - lichen planus. This spread at an alarming rate and went into his scars and even formed holes under his feet, it was a frightening experience, to say the least. When other treatment failed, our dermatologist decided to try UVA treatment. Side effects hot, tired, eyes were super sensitive, after about 10 sessions we stopped as the treatment had clearly worked, the lichen planus was no longer active.
My advice is use your sunglasses even after treatments, whenever you in the sun to minimise the sensitive eyes. I apply a high factor of suntan lotion to my face and areas that are clear - I am not sure how effective it is but my face has never burnt. After treatment I shower and use aftersun to prevent any discomfort.
Hope this helps someone.