10 Easy Ways to Become Psoriasis Savvy
Living with psoriasis can be hard. It can be harder if you’re spending all your time staying on top of the latest psoriasis news and information. Luckily for you, we’ve compiled a list of 10 things you can do to get involved and stay informed about all things psoriasis — while still leaving you time for the things you love.
If you’re a visual learner, look no further than the AAD’s psoriasis video library. These six videos are a must-watch for anyone looking for a strong grounding in the basics of psoriasis. They cover psoriasis diagnosis and treatments, related conditions like psoriatic arthritis, and how to cope with the stress of living psoriasis.
The National Psoriasis Foundation is one of the best resources for keeping up with psoriasis. Besides their fundraising and advocacy efforts, they connect people with support groups, host events, and offer a psoriasis-related news and events blog. You can also chat with a Patient Navigator who can answer your questions about living with psoriasis.
Every three years, the Psoriasis International Network brings together 4,700 dermatologists and rheumatologists for a conference devoted to improving health care for people with psoriasis and developing collaborations in the field. Webcasts from the 2016 Congress are now available. Subscribe to the newsletter for updates on the 2019 Congress.
Can’t wait until 2019? The American Academy of Dermatology (AAD) is holding its annual meeting March 3-7, 2017 in Orlando, Florida. While the event is only open to AAD members, patients can follow along on Twitter using the hashtag #AAD16 and get the inside scoop about the meeting via the AAD newsletter Dermatology World.
Dealing with common misconceptions about psoriasis (no, it’s not contagious!) can be frustrating. Under the Spotlight, sponsored by the International Federation of Psoriasis Associations, offers clips, documentaries, and patient interviews that can help you learn about psoriasis self-care. You can also share them with family and friends.
ClinicalTrials.gov can help you keep up with emerging therapies and gain access to treatments not yet approved by the FDA. Currently, there are over 1,000 psoriasis studies in the ClincialTrilas.gov database, some of which are actively recruiting volunteers. Get started using advanced search; set up a personalized feed to keep the info flowing.
PubMed.gov is another great way to keep up with scientific discoveries about the nature, prevalence, and potential treatments for psoriasis. Best of all, PubMed.gov isn’t just for scientists. Anyone can set up customized email alerts for this database of medical journal articles sponsored by the National Center for Biotechnology Information.
Dermcast.tv — a media resource sponsored by the Society of Dermatology Physician Assistants Incorporated (SDPA) — publishes a weekly podcast about psoriasis and other skin conditions. The podcasts include recorded workshops and lectures from the SDPA annual conference. New content is added weekly. Subscribe on iTunes.
Connecting with others who are successfully managing psoriasis is a great way to stay informed. The National Psoriasis Foundation offers a wealth of opportunities for networking with other patients including the 2017 National Volunteer Conference, Team NPF fundraising activities, and a calendar of events for psoriasis events around the country.
HealthCentral offers a broad range of psoriasis information and patient support, including a blog, social media, and regularly-updated articles about treatments and living with psoriasis. We also offer a community of patients sharing their psoriasis stories. Bookmark our pages, check back often, and join our community.