Narcolepsy and Me

Thanks so much for your post.  It sounds like it has been a long road, but you finally have an answer to what has been happening to you.

 

Please come back and talk more about what is happening and how you are doing.  There are lots of people here who have similar experiences - all want to help.

 

You also might want to read our Understanding Your Sleep Disorder with specific information regarding Narcolepsy and Restless Leg Syndrome. 

 

Please post more when you can - we'll look forward to hearing from you and hope we can help. 

 

All the best, SMM 

I was also born with narcolepsy. I starting showing majorly in third grade. Through out my school year up untill 8 th grade everyone thought I was abused, lived in a drug house, or had drug problems of my own. So I was treated like a no good punk who didn't want to learn (pretty sad huh). In 7th grade after only two months of being in school all my teachers decided that I should be givin a one-on-one. SO the first time in my life i got almost straight A's. I switched schools after that year and was not given a touter. Finally one day one of my teachers say's 2me you have narcolepsy. I sad no i don't not knowing what he was talking about. He said u change classes every 70 minutes and as soon as you sit down in every class but gym u fall asleep. soon after I was given a sleep test and was put on provigile. I am now 24 and still am on provigle and vivactil becasue I also have cateplexse (which is a siezure like affect that happens during any kind emotion or excitment). I would have to say the narcelapse isn't so bad but the cateplexse is the worst and I hate. I have really bad cateplexse i think from what I read about cateplexse my is ten times worse. but thats me and my fun narcoleptic life how about yours. Oh I try to have a postive aittude about my disorder by like making fun of my self with friends and stuff I think it helps me cop with and helps friends understand it more because we talk about it.