My daughter is now 16 years old, a junior in high school, and has been suffering with intense daytime sleepiness for the past 3 three years or so. She can not stay awake in her classes and says that she feels like a giant wave of sleep comes over her and she is powerless against it. It has been getting worse over time and now her teachers are getting annoyed at her because she is not paying attention in their classes. About a year and a half ago, she underwent a sleep study (both overnight and daytime) and it was inconclusive for narcolepsy which is what the doctor suspected it was. Although we did not get a definitive diagnosis, I believe she is a narcoleptic because she has all the other symptoms of narcolepsy, such as the intense, almost hallucinatory dreams and the temporary paralysis when falling asleep.
It has gotten to the point where she can no longer learn in a traditional school setting and we all so upset and frustrated by this because this is an important year for her in terms of getting into a decent college.
It is noteworthy that she is on an SSRI which I believe suppresses REM sleep. Could this be contributing to her sleepiness? If so, what can we do because she also has generalized anxiety and severe anxiety attacks and we are not sure how she would do off her medication for this. We tried Provigil prophylactically, but it gave her palpitations and had to be discontinued. She also suffers from orthostatic hypotension and takes Pindolol 5 mg qd.
If you can offer any insight into what can be done for our daughter, we would be so grateful. She is in despair over her inability to stay awake. Her friends understand when she has to sleep when they come over on the weekends, but she hates it.
Thank you.
Lisa H.
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