Friday, June 01, 2012
Tuesday, May 27, 2008 Ms. Martin asks

Q: How can I manage living with narcolepsy?

I am a 23 year old female who has naroclepsy, catiplexy, anxiety, and depression.  I was diagnosed with Narcolepsy at the age of 14. Although; I believe I had narcolepsy much sooner than that. This disorder has caused me the other disorders stated above.  I have a very hard time accepting the fact that I need help in almost every aspect of my life. Transportation, cooking, cleaning, managing money, schedualing and keeping doctors appointments is only half the battle.  There is a hate that grows in me for myself and narcolepsy. I can complain all day long, but i thank god that I am what he has made me.

 

My Question is: Is there any help in Cleveland Ohio for people like me?  I really want to get better my my family .

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Answers (3)
5/28/08 2:33pm

Thanks for your question Ms. Martin.  First, I thought you might be interested in reading our material on Understanding Narcolepsy.  Then you will find a list of web resources that focus on narcolepsy.  Most are national organization who will have local chapters in most major cities.

 

Hope this helps and all the best, sue

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6/ 4/08 6:21pm

Dear Ms. Martin,

 

Thank you for your question. In addition to the "Understanding Narcolepsy" article that Sue listed, you can also learn more about narcolepsy from these articles:

 

 

 

 

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4/ 2/11 3:34pm

find me on facebook. I am interested in starting a support group for narcoleptics in the Cleveland area. I am narcoleptic, diagnosed less than 2 years ago, onset age 14. People do not understand our daily battles, but we can come together and help each other.

 

Suzie Reagan  

 

http://www.facebook.com/suzie.reagan

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By Ms. Martin— Last Modified: 04/02/11, First Published: 05/27/08