They say we don't hurt but we know what we go through. Because there's some people, they say, ‘Oh, psoriasis doesn't hurt. It's just your skin peeling.’ No, it's not just your skin peeling. It's like also an infection in your skin and inside your body.
Adriana Pena Carmona
Photographer: Jerrell Trulove
I think the biggest obstacle was just the stares in public…all or most of mine was on the face. I guess I could have worn a ski mask around in public, but that probably would have raised some more eyebrows…also, for awhile it did interfere with my life, so I had to use a cane temporarily. You know, here I am, 25 years old. I don’t know of anybody else my age that’s walking around having to use a cane all the time.
Photographer: Jesse Patterson
Psoriasis isn't on the health agenda as it should be so it doesn't get awareness like other conditions. Living with psoriasis often means for me, that I can't go to work because I haven't slept or I've reached the end of my tether with it. In these situations you can often feel guilty to take these actions but actually in reality this is fine because this is what it means to live with a chronic condition.
Photographer: Lewis Khan
I never wanted to go to a water park because I had to be in a bathing suit, stand in line, and be close to people, so people could really see it. I think I remember as a kid being upset like, ‘I don't understand. Why do I have this? Why don't other kids have this?’
Photographer: Thomas Van Veen
So we were together for like nine years but it was getting very, I guess, emotionally abusive because he would say things to keep me there, he would say things like, ‘You know, no one's gonna love you like I do with all that stuff on your skin.’ He would kind of...I really was brainwashed to believe that with psoriasis no one...I can't date anybody else. No one's gonna wanna marry me, it's so unsightly and gross. And it was, it really was, it looked like a burn victim, I was that covered, I was like 80 percent. It was crazy. So I stayed because I was scared that I would never be a mom or be a wife, and live this life that I had imagined.
Photographer: Lisha Riabinina
It stopped me from wanting attention. I definitely shied away from having attention… it's sort of weird for me because I like to perform, I was in the hip-hop step team in college, I'm in a fraternity where we did shows all of the time. And so, it was hard for me to be a part of that because I was like, ‘OK, well, I have to keep this covered. I can't do this, I can't do that.’ So, if we couldn't come to some resolution, I just had to back out of it.
Photographer: Stan Kaady
I didn't work for two-and-a-half years, and I basically had to learn how to do everything again because it weakened my body and my walking, so I had a cane for a while. And literally, in like a couple of days, I went from like being healthy and walking and fine to I couldn't walk. The pain was just extreme. It would take me 10 minutes just to walk to the bathroom.
Photographer: Lizzy Sullivan
Many people said, ‘I feel this sculpture. I know how this feels. I know this posture, this feeling of just...’ I don't know, this introverted, maybe depressed, just that feeling you get when your body is not cooperating, and you don't have a choice, you know?
I joined this college Christian fellowship group on campus. And that group really accepted me and kind of empowered me to share and speak up…I spoke in front of a large group that we had once a month and just shared my psoriasis story. I shared about my faith and how that helped me overcome just a lot of different struggles, physically, emotionally.
Honestly, I don’t remember ever being like formally diagnosed…but I started showing symptoms probably around I think 12 or 13…so the best time of a young man’s life for it to break out, you know, those young teenage years.