I have had migraines for as long as I can remember. About 4 years ago I started getting muscle spasms only on the left side of my head, with or without the pain. at first the spasm lasted only a short while, then a little longer and longer, now the spasm never goes away. It effects my vision, speech, balance, muscle weakness on the left side. My neuro had my on Topamax, it was a God send for about 5 mos. then it quit working, then he tried large doses of Zoloft no effect, the last thing he tried was Zonegran no effect what so ever. My neuro calls them Hemiplegic migraines. I need relief so I can function, the spasms NEVER go away. Can you please help? Susan.
You ask a number of very good questions relating to your headaches. Is your neurologist a headache specialist?? Your symptoms do not sound like like hemiplegic anything. Zoloft has had a dismal effect on migraines per se and the Topamax might have been increased slightly to keep its benefit for you. Spasms, whatever you describe, may be a totally different issue, but some new items like tizanidine have been very helpful. I don’t know where you reside, but getting to a Migraine and headache specialist might be key. There’s a link to our directory of recommended specialists below.
John Claude Krusz and Teri Robert
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