Gerd And Torticollis

Question

Asked by Cindy Gannon

Gerd And Torticollis

My son, 18 months old, was diagnosed with GERD at 6 weeks of age and Torticollis at 8 weeks. We started medication for the GERD and physical therapy for the tilt. In time, we discovered that he does not have muscular torticollis, but that is related to his GERD symptoms. He tilts to both sides and it is very inconsistent. I've actually found that mainly fruits will make him tilt. For example, I gave him raspberries a couple of weeks ago, and he tilted for 10 days after that. It is not like a Sandifer's Syndrome where he tilts for only a couple of minutes, he will tilt continually for weeks. He has been discharged from physical therapy, everyone says it's related to his reflux. But yet he continues to tilt. He takes 30 mg of prevacid a day via capsules mixed in applesauce. We are very frustrated and not sure where to turn from here. Any suggestions would be very helpful.

Thank you!!!

Answer

Dear Cindy,

Thank you for posting your question. It is certainly a less than common presentation of reflux. However, after raising my daughter with reflux and every mystery symptom in the book, I know that anything is possible!

I wonder how the doctor determined that the head tilting was related to the reflux. Did the doctor do a pH probe and monitor acid levels during one of the head tilting episodes?

I wonder if a neurologist has examined your son. It is important to rule out seizures that may be unrelated to the reflux or foods he is ingesting.

Next I wonder if you have seen a food allergy specialist.
Some doctors will do a very strict "elimination diet" to rule out allergies and look at symptoms.

Last, a few children react to the PPI medications with headaches and other symptoms. I wonder if the brand of medication has been changed or if the doctor had him take a medication holiday.

I know this is a great deal of information to think about. Let me know what you think of all of these ideas. Remember, I want you to talk to your doctor about these things and see what makes sense for your little boy.

Be sure to give me an update when you get a chance. It helps me to know "how the story ends" so I can help the next reflux mom!

Best wishes,

Jan Gambino

The Reflux Mom

Answered by Jan Gambino