When our MS is behaving itself and not being very active, it makes sense that we would not see our neurologist as often. When MS is rearing it’s ugly head, we probably find ourselves in the doctor’s office often.
At the beginning of my MS career, not a month went by that I wasn’t in the neurologist’s office for one reason or another. Between July 2005 and February 2006, I may have skipped November with no neuro appointment. However, I was in the occupational therapist’s office twice a week from September through December.
There were so many appointments - neuros, testing, MS nurse, steroids, occupational therapy, injection training, more steroids, newly-diagnosed group meetings - that I felt I lived at the medical facilities.
Until the MS activity started to taper off a bit, I was seeing the doctor every 3-4 months (unless new activity emerged again). It seemed to be a big deal when I graduated to having neuro appointments every 6 months. I have yet to go a full year without an appointment.
My question to our readers today is:
Lisa Emrich is a patient advocate, accomplished speaker, author of the award-winning blog Brass and Ivory: Life with MS and RA, and founder of the Carnival of MS Bloggers. Lisa uses her experience to educate patients, raise disease awareness, encourage self-advocacy, and support patient-centered research. Lisa frequently works with non-profit organizations and has brought the patient voice to health care conferences and meetings worldwide. Follow Lisa on Facebook, Twitter, and Pinterest.