My Neurologist Says Fibromyalgia Is Not Real

Question

Asked by arlene

My Neurologist Says Fibromyalgia Is Not Real

So after a 3 month wait, finally I had my appointment w/ the neurologist and he says "what is Fibromyalgia?" He says 'fibro' meaning fiberous tissue and 'myalgia' meaning muscle. So then he says I could get it here, in the arm and could call it Fibromyalgia. I almost knocked him into tomarrow. He says nobody knows anything about this and was so negative.

So now after my last hope has disregarded me and my pain- WHAT DO I DO NOW????

Doctors have given up on me, and now the last hope I had.

I'm in the middle of potty training my 2 year old daughter and by the time I make it to the bathroom, it's to late. So I will have to give up, just like these so called Doctors/speacialist/medical profession.

The only thing that has helped is upper cervical and i can no longer do the drive of 1hour and 1/2. Pain meds can help for up to 2 hours. Then start all over.

Answer

I'm so sorry to hear you had to go through that. Unfortunately there are still some ignorant (and rude) doctors out there who have not kept up with new research on fibromyalgia. The good news is there are a lot fewer of them than there were 10 years ago. The FDA approval of two medications to treat FM has given it a new-found legitimacy in the minds of many health care professionals.

Have you seen a rheumatologist yet? Although research in the past few years has shown that FM is a neurological problem, it has been historically treated by rheumatologists and many will still treat FM patients. The field of neurology has been slow to accept us, so much effort has been aimed at educating family physicians to treat fibromyalgia.

If you can find a doctor who cares but just doesn't know much about FM, there is a new resource that can help them. The National Fibromyalgia Association has developed a new Web site specifically for healthcare professionals. It's a new site and they have plans to expand it, but there's already a significant amount of good information there. You can find it at: www.fibromyalgiaHCP.org

I know how frustrating and exhausting it can be trying to find a doctor who will listen and understand, but please don't give up. There are good caring doctors out there and you deserve one, so keep trying.

Answered by Karen Lee Richards