Ocular Migraine And Mini Stroke

Question

Asked by ICD2008

Ocular Migraine And Mini Stroke

A few months ago I had problems with my vision. I was working on the computer and was typing words and numbers. I couldn't see the last few letters of the words or the last few numbers, like the dollar amount ($10.50). I couldn't see the .50. I was taken to the ER and was checked over for a possible mini stroke. They prescribed Xeralto. I did not have a headache or any other symptoms and my vision returned within 45 minutes or so. I did go to an eye doctor later and he thought it may have been an Ocular Migraine, but when I went to a Neurologist he said that I did have a mini stroke. If this happens again, should I rush to the ER again or just wait it out? Also, with Zeralto being so expensive, is it possible to stop taking it? In 2008 I was diagnosed with non-ischemic dilated cardiomyopathy and now have a bi-ventricular cardio device with 3 leads. I'm doing great, but I am told that I do have heart failure.

Answer

ICD2008,

I am so sorry for your scary experience. There are a couple of things I'd like to offer you here:

To get you started, here is some information that helps explain ocular Migraine which is a term that is actually misused frequently by non-Migraine specialists. Understanding the different types of Migraine is vital: The Type of Migraine Does Matter As a result of the misuse of terms, confusion between doctors and therefore misdiagnosis and mistaken treatments can result. This is really important for you to understand so you can have these important conversations with your doctors when they make this mistake. Here are two links: Ocular, Optical, and Ophthalmic Migraines and What is an Ocular Migraine?

If your doctor isn't able to help, it may well be time to consult a Migraine and headache specialist. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

As much as I'd love to be able to answer all of your questions, the only person who can safely do that is a doctor who can review your and your family's medical history, discuss your symptoms with you, and conduct a complete examination. Nobody can diagnose via the Internet.

Unexplained neurological symptoms always need to be checked out. Statistically, it's unlikely to be anything dangerous, but we never want to be on the wrong end of those statistics. In light of your history and past experience, I think it would be really important for you to get a second opinion from a headache specialist who may be the very best place for you to find the information you need. Remember to ask lots of questions and make sure you understand everything you're being told, and also that your doctor hears everything you need to tell him/her. This is super important.

~Ellen ****