Pain and MS

Community Member

Is MS painless? When I was first diagnosed with MS, it was common for the MS literature to refer to it as a painless disease. I was dealing with a new diagnosis of a disease I did not yet understand and was wondering what else was wrong with me. Articles said MS didn't bring pain, but I was in pain. Many MSers know that feeling.

Now times have changed. MS is recognized as a pain-filled condition even though not everyone feels it. The Multiple Sclerosis International Federation (MSIF) tells us about 50% of all MSers experience some pain. WebMD cites a survey of 70,000 that reported 50% were hurting at the time of the survey, but 70% had pain sometimes. The National MS Society tells us 55% have "clinically significant" pain while 48% have chronic pain. Another source offers the prevalence of pain between 13% to 80%, a typical example of imprecise MS information.

Types of Pain in MS

There are two types of pain in MS, Acute and Chronic.  Acute pain, also known as** Paroxysmal**  pain, may come on suddenly and go away just as suddenly.  It is often repetitive and quite intense, but thankfully, can be quite brief. A pain is considered  Chronic  after lasting for more than a month.  This includes pain caused by spasticity.

But wait. It can't be that simple, and it's not.  There's more --

Neuropathic pain  is the most common kind of pain in MS.  It happens when nerve damage makes the nerves very hyper-sensitive.  Sometimes it includes a short circuit in communication of pain signals to the brain caused by demyelination.  Usually neuropathic pain feels like an intense burning or shocking sensation. Neuropathic or chronic neurogenic pain may be classified as either acute or chronic.

Musculoskeletal pain  may be the same as neuropathic in that signals between the brain and painful area may be misdirected or misinterpreted.  It usually involves muscles or joints and may also be classified as acute or chronic.

Besides these, there are also the following:

Internal pain  caused by internal symptoms.

Side effects  of drugs taken.

"Tertiary" MS pain  resulting from falls, bumps, or injections.

Emotional  pain may be as simple as just having the blues, loneliness due to isolation, low self esteem, or

Depression  that actually involves chemical unbalance.

Each time a new pain is identified, it is important to determine if it is caused by MS or something entirely different and may be easily treated.

In this series of articles, I plan to talk about specific pains, treatments and general pain management. In addition, I plan to emphasize how a positive attitude, even with pain, affects quality of life.

According to The MS International Federation, "Pain in MS is a hidden symptom, but one which can be persistent. Pain can cause much long-term distress and impact severely on quality of life. Self-help may play an important role in pain control, for people who stay active and maintain positive attitudes are often able to reduce the impact of pain on their quality of life."

The National MS Society adds, "People who stay active and maintain positive attitudes are often able to reduce the impact of pain on their quality of life."

Many of you - whether it's 13%, 50%, or 80% -- experience pain of one kind or another, or even more. If you have any specific pain you want to know more about, please ask. If you have a story about your pain or treatment or attitude, I ask that you share that story. No two people experience and describe pain in the same way. Your story may help alleviate the pain in others. By sharing it, you may help alleviate your own.

"The aim of the wise is not to secure pleasure,

but to avoid pain." ~ Aristotle

Notes and Links

Please let me know if you have a story to share.

Types of chronic pain

Pain in MS


NMSS on types of pain

WebMD  - Treating MS Pain