Please Help. Horrible Scalp Allodynia. What Can I Do? I Can't Live Like This Much Longer.


Asked by pd5

Please Help. Horrible Scalp Allodynia. What Can I Do? I Can't Live Like This Much Longer.

Years ago I was dx'd with silent migraines and basilar or something like that. I told the dr. he was insane. now i am sorry i didn't at least try what he had to offer becuase i am still sufferring horribly with no other real dx that explains my neuro problems. My question is about allodynia. my entire scalp hurts so bad that i cut off all my hair trying to make it stop. i look like a freak and it still hurts all the time. i cant eat or sleep or think. i just want to die. is there anything at all i can do to make this stop? i can't take it much longer.


Hi pd5,

Constant pain can make us vunerable and feel desperate. I can understand that, but if you are having thoughts of harming yourself, or others or suicide, you must seek help right away. I can provide you with immediate resources; If You're Having a Crisis. You see, when someone posts about feeling suicidal, it is something we must take very seriously. We need to be sure that the person seeks help and is safe. I need to hear back from you and know how you're feeling now. What doctor did you call about this? What did your doctor say? How are you feeling now. Please get back to me as soon as possible. When someone has been feeling as you have been, if we are not able to contact them and be sure that they have sought help, we must take steps to have someone in authority find the person and confirm that they are safe. So, I must hear back from you within 24 hours or determine what steps to take to verify your safety. We are not suicide prevention professionals. However, we care, and have a responsibility to take steps to ensure your safety. Please contact me.

Allodynia, as you know, is a condition in which an ordinarily painless stimulus is experienced as being painful. Some people have this only when they have a Migraine, but there are a few people who have it when they don't have a Migraine. Here is a good article on allodynia you can take a look at; Allodynia: When Touch Hurts But Shouldn't.

If the Migraine attacks can be reduced, your allodynia may improve, but certainly if your current doctor is not helping you, it may well be time to consult a Migraine and headache specialist to help you with an accurate diagnosis. It's important to note that neurologists aren't necessarily Migraine and headache specialists. Take a look at the article Migraine and Headache Specialists - What's So Special? If you need help finding a Migraine specialist, check our listing of Patient Recommended Migraine and Headache Specialists.

Please let me know how you are doing as soon as possible.


Answered by Nancy Harris Bonk