How Do Most Ra Paitents Cope With Working A Full-time Job?

Question

Asked by Frustrated!!!

How Do Most Ra Paitents Cope With Working A Full-time Job?

I read about all of these RA patients that are very motivated about being able to work full-time and possibly even a part-time job. The pep talks are really great, but the reality for alot of us is that it is just not an option. Is it just me?, or are there others out there that feel the same. I am 43 yrs. old, have always been a TYPE A personality, my mind imagines all types of scenerios, but my body just will not cooperate. What type of jobs do other RA patients have? I do not receive any type of disability, just trying to readjust our way of living. Could there be a difference in the degree of one's own disease that would effect one's ability to work a full-time job? I battle with RA and Fibromyalgia. I have always been the type of person who motivates others. When I read these posts, I sometimes can't help but feel like "what is wrong with me?"-when I know they are intended for a more positive purpose. Is it just me, does anybody else feel this way? What kind of jobs do they have?

Answer

I work for a financial services company, so I sit in front of a computer all day long. I have fibromyalgia, RA and osteoarthritis. I guess I am really lucky, because I take something for the fibro which really helps the burning pain and the fibro fog. The fibro fog was one of the scariest things I had to deal with at work. I just couldn't think, and I was starting to wonder if I would be able to continue working. The worst part of the RA, before I was put on meds, was the pain in my feet. I could not walk. The pain was intense. The osteo is bad in my knees, but I have really been working at losing weight, and that has helped a lot. My doctor told me that I couldn't control a lot of things w/these conditions, but I could control exercise and weight. That gave me a sense of empowerment that I really needed. I have lost 15 lbs, and I would like to lose 15 or 20 more lbs. I must say the exercise thing is on the back burner, but I hope to start walking in the evenings soon. That is all I can do except for swimming, and there isn't a convenient pool nearby. In addition to that, I am really, really tired when I come home. My house isn't as neat and clean as it used to be, but that is not the most important thing in life. There are things that I cannot do anymore, or at least I can't do them in the same way I used to. That's okay, though. I have made peace with it, and I make a choice every day to enjoy the people in my life, and the opportunites I do have for joy. If the pain gets very bad, I cut myself some slack. I'm not always positive and sometimes I'm downright grumpy. But each day is a new day, a new opportunity for happiness. Please know that even though you may feel really bad today, tomorrow may be better. Looking foward to good days keeps me going. I hope you feel better soon. As Winston Churchill said many years ago, "Never, never, never, never, never give up!"