https://www.healthcentral.com/article/rare-disease-advocate-on-health-advocacy
FibromyalgiaAdvocacy

Rare Disease Advocate Recommends Patients Advocate for Their Disease — And Here’s How

Rep. Gus Bilirakis, R-FL, and Candace Lerman in his office on Capitol Hill. Bilirakis is the sponsor of the OPEN Act. They met in Oct. 2017 to discuss to discuss their strategy for gaining more cosponsors for the act in both the House and Senate.
Rep. Gus Bilirakis, R-FL, and Candace Lerman in his office on Capitol Hill. Bilirakis is the sponsor of the OPEN Act. They met in Oct. 2017 to discuss to discuss their strategy for gaining more cosponsors for the act in both the House and Senate.Candace H. Lerman
    Gus and Candace with other Florida rare disease advocates during Rare Disease Week in February, 2015.
    Candace in Bilirakis’ Capitol Hill office with fellow Florida rare disease advocates during Rare Disease Week in February, 2015.Candace H. Lerman
    Erin L. Boyle

    Erin L. Boyle

    @ErinLBoyle

    Erin L. Boyle, the senior editor at HealthCentral from 2016-2018, is an award-winning freelance medical writer and editor with more than 15 years’ experience. She’s traveled the world for a decade to bring the latest in medical research to doctors. Health writing is also personal for her: she has several autoimmune diseases and migraines with aura, which she writes about for HealthCentral. Learn more about her at erinlynnboyle.com. Follow her on Twitter @ErinLBoyle.