Instagram has really changed the game when it comes to giving people with multiple sclerosis (MS) a platform to share their interests, experiences, and the ups and downs of their lives. And if you have MS like I do, it's so great to know there are others out there who understand what you’re going through. No matter what kind of help or advice you’re looking for, there's bound to be someone on Insta talking about exactly what you need. Consider this a head start: Here are my 10 favorite MS Instgrammers who are all worth a follow!
Lindsey Holcomb is the founder of the #colorsofMS project, where she takes the MRI scans of MS patients and turns them into absolutely incredible works of art. Her Instagram is full of beautiful bright colors, turning something that is often a sign of bad news—a brain scan showing the presence of MS—into something you want to stare at for hours. She regularly features new patients, tells their stories, and then shares her artwork of their scans. Her posts are not only gorgeous, they’ll leave you with all the feels, too.
Fave Quote: “My passion for painting MRIs came from a moment of grief, which changed how I viewed my own multiple sclerosis diagnosis. I felt raw, emboldened, and for once I felt in control.”
Ardra Shephard makes mobility aids look hot. Plain and simple. Mobility aids for people with MS have been a big topic this year, and with Instagrammers like Shephard sharing their adventures, using walkers, canes, and wheelchairs is becoming more normalized. Ending many posts with #babeswithmobilityaids, it’s hard not to appreciate the candid way Shephard shares her life with all of us. We see her travel, explore her city, and battle MS all while looking fierce.
Fav Quote: “I don’t believe in always being grateful things aren’t worse. However. Today, I will focus on being grateful for every slow, unsteady, awkward step I take. I can feel sad and scared tomorrow, but today I’m gonna think: I’m still walking. And isn’t that amazing.”
Queen of fabulous selfies, Laura Ashley Laraque is facing MS head-on and isn’t hiding any of it. From good days to fatigued days to post-infusion-exhausted days, she’s putting it all out there in a way so few are brave enough to do, and I am here for it!
Fave Quote: “Too many times I don’t allow myself to be ME despite my MS. It’s okay if I wear my cane one day and the next I’m in heels. It’s okay...because it doesn’t mean I’m weak, it means I’m trying to make the best of the good moments; no matter how few they may be.”
I don’t personally know Eliz Martin but I want to. Her Instagram is so full of personality and honesty, she just seems like someone I want to be friends with. But the real reason she’s on this list is because her Instagram highlights are pure fire. She’s got highlights for newly diagnosed patients, tips for talking to your doctor, and info about mobility aids. If you looked at nothing but her highlights you’d laugh, you’d cry, and you’d walk away feeling inspired.
Fave Quote: “You know what’s funny about my health journey with MS? It’s given me a voice...and then sometimes it takes it away (looking at you dysarthria). 💩 Some day I hope to look back and think: We made a mark. We created a better outlook for future generations. We generated avenues that allowed room for inclusion.”
Dave is a staple in the online MS community and has made it his mission to show people with MS that they can still be active. His Instagram shows him using his wheelchair to travel the globe and participate in adventures that most of us only dream of. Dave’s infectious positivity and humor make him so approachable, it’s like you’re really there traveling with him.
Fave Quote: “When you have a progressive disease, when is the best time to travel? Right. Now. The answer is always the same no matter your #disability. Explore the world as best you can today.”
Over the past year, Selma Blair has become an incredible advocate for MS and the use of mobility aids. Selma has approached the topic of MS honestly and shared it with us in a way that is so vulnerable you almost forget she’s a celebrity.
Fave Quote: “Underneath all the doubt. It will be ok. Take it smaller to each moment. Let the body heal. Nourish. Walk slowly. Burst into laughter. Give my nervous system a chance. I see how wonderful and kind people can be. I see how frightening it can be. Uncertainty. I am choosing to say this too shall pass.”
Looking for an MS-friendly smoothie recipe, great book recommendations, or a reminder to take your meds? Simonne has got you covered. She’s plant-based, meditates often, focuses on low-toxin living, and because she lives on a beach in Sydney, Australia, she soaks up tons of vitamin D, which could improve MS symptoms and slow disease progression, according to the Mayo Clinic.
Fave Quote: “I realised back in the early days of my diagnosis that those who healed BELIEVED it was possible. So a big shift I made was believing wholeheartedly that healing and remission was possible, without any doubt, and living by that every day.”
If you’re ever in need of some inspiration about what people with MS can do, check out Shane from HammerTheWall. He’s running, he’s biking, and he’s also getting his infusions to manage his MS. Looking over Shane’s IG makes me want to take a nap, but it also reminds me that there are tons of people living with MS that continue to blow my mind with the amazing things they do. Even though I am not a runner, seeing someone do so much of what they love is incredibly inspiring.
Fave Quote: “Treatment matters. Food matters. Exercise matters. But believing in yourself...that’s the most basic, fundamental, and crucial piece of the puzzle. Live the life you were given beyond your own preconceived limitations.”
Beautiful shots of European cities, delicious food, and the real life of an MS patient … what more could you ask for? MSninjaaa’s instagram has it all. There’s enough to leave you jealous of the scenery, hungry for whatever she’s cooking, and inspired by the way she tackles MS.
Fave Quote: “Chronically ill people are so badass like our bodies have Major Meltdowns on almost a daily basis but we just keep going! Like nah, 99 symptoms can’t stop me. I have no idea how we do it but I’m impressed - SHOUT OUT TO US.”
Must Stop MS was founded by Randy Patrick after his MS diagnosis in 2012. Randy is also the founder of the Monday night Twitter chat #ChatMS which is a huge success but if you’re not a Twitter fan, Must Stop MS also posts the questions to Instagram to get more people talking about living with MS and to connect more people to share the benefits of a community wide conversation.
Fave Quote: “Multiple Sclerosis can make some feel very alone. We need a support system. We need someone to listen to us, believe us, and be there for support. Sometimes all you have to do is listen.”