What Do You Do When Absolutely Nothing Works? After 27 Years, I Am Still Fighting A Losing Battle.

Question

Asked by sammyjoe

What Do You Do When Absolutely Nothing Works? After 27 Years, I Am Still Fighting A Losing Battle.

I am 46, and I don't think I can fight this fight anymore. I have been in drug trials, been on probably 2 dozen different meds, tried PT, trigger point injections, botox, chiropracty, vitamins, herbal remedies, diet modifications, spent 30 days in a pain clinic, and seen 4 different neurologists. At the moment I sleep with ice on my head, take 5 prophylactic drugs, use a combination of imitrex, feurocet, percocet, and "Head On" for actual migraine attacks, and go to the ER for IV dilaudid, benedryl, torodol, and zofran when all else fails. I have nothing left to live for at this point, because I cannot live in constant pain anymore. I have chronic daily headache, migraine, and ice-pick headaches. I feel like I am being stabbed with an ice pick over my eye, into my temple, and down from the top of my skull...all at the same time.

Answer

-:¦:-•:'"":•.-:¦:-•Welcome to MyMigraineConnection!•-:¦:-•:'"":•.-:¦:-

Oh, {{{{{{Sammyjoe}}}}}}

Bless your dear, sweet heart. You've been through the wringer, and I can so relate to you. It's encouraging that you're here though because that tells me that you still DO want to live and would like to find some help.

About ten years ago, I felt much as you say you do -- wondering what there was to live for -- because I spent most of my time in bed with the Migraine from hell. I'd been through family doctors, ENTs, allergists, and had seen and fired every neurologist within 100 miles of my home. I finally got angry enough to take charge of my health care and went to a Migraine specialist. Now, I often go two to three MONTHS between Migraines. If you want to read more about my own battle against Migraine disease, take a look at Excerpt 2 - "Living Well With Migraine Disease and Headaches."

The turning point for me was learning that neurologists and pain management doctors aren't necessarily Migraine specialists. There ARE doctors who specialize in Migraine and other headache disorders and treat nothing else. That gives them lots of experience, and since that's all they treat, they can stay up-to-date on the science and treatments. Nancy's link didn't work, but we do have a listing of patient recommended specialists HERE.

We know how easy it is to feel as if you've tried everything out there, but there are so many medications that can be used for Migraine and headache prevention that it's literally impossible. You can find a list of potential Migraine and headache preventives in Migraine preventive medications - too many options to give up!

Sammyjoe, there's a lot more information we can share for you, and we're right here to offer you support.

PLEASE let us know how you're doing?

with a gentle hug,

Teri