Phyllis Johnson

Phyllis Johnson

Patient Advocate

Phyllis Johnson is an inflammatory breast cancer (IBC) survivor diagnosed in 1998. She has written about cancer for HealthCentral since 2007. She serves on the Board of Directors for the Inflammatory Breast Cancer Research Foundation, the oldest 501(3)(c) organization focused on research for IBC. Phyllis attends conferences such as the National Breast Cancer Coalition’s Project LEAD® Institute. She tweets at @mrsphjohnson.

Latest Articles by Phyllis Johnson

HC promo logo
Breast Cancer

Inflammatory Breast Cancer Doesn't Always Start with a Lump

One of the most frightening aspects of my breast cancer diagnosis in 1998 was that I never knew my symptoms might be breast cancer until the doctor told me I needed a biopsy for inflammatory breast cancer. I didn’t know that breast cancer doesn’t alw...

Woman holding her chest in pain.
Breast Cancer

Understanding Inflammatory Breast Cancer

A rash on the breast could spark panic — but this may put your mind at ease.

HC promo logo
Breast Cancer

Smart Tactics for Helping Others During Stressful Times

Holiday season is upon us. We will be gathering with family and friends we haven’t seen in a while. Someone will have had a crisis since you have last been together. If you have been diagnosed with breast cancer recently, that person in crisis is you...

Hugging a friend who has cancer.
Breast Cancer

The 10 Things Your Friend with MBC Wants You to Know

It can be difficult to understand what others with breast cancer are going through. This is what your loved one needs you to know but might be scared to tell you.

Mother with breast cancer smiling and touching her daughter's hand.
Breast Cancer

Going Strong 10 Years Later with Metastatic Breast Cancer

The Metastatic Breast Cancer Network has rewritten the usual script about metastatic breast cancer with its 10+ Years story project.

Predicting the Course of Metastatic Breast Cancer
Breast Cancer

Predicting the Course of Metastatic Breast Cancer

Not all metastatic breast cancers are the same. This new mathematical model could give you more specific information about your prognosis.

Older couple having serious discussion with doctor.
Breast Cancer

Living Longer with Metastatic Breast Cancer: A New Report

Many people think metastatic breast cancer is a death sentence, but more women are living longer despite this serious diagnosis.

Friends talking over coffee.
Breast Cancer

Telling Friends About Your Metastatic Breast Cancer

You don't have to tell everyone about your metastatic breast cancer diagnosis, but if you do, here's how you can make the process as easy as possible.