Like your child, you may need counseling and that’s 100% ok. “It’s a lot to see your child going through what they do, and it’s long road for families,” says Mary Rensel, M.D., director of Pediatric Neurology and Wellness at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic.
It’s not your imagination: Having a child with MS changes everything, says Spitz. “All of a sudden you’re uncertain about your child’s future. You don’t how fast the disease might progress. That’s hard to deal with. You have be okay with not knowing,” she says. And if you’re not, a therapist can help you get there.