Although metastatic breast cancer hasn’t always gotten the attention or research focus that it deserves, there are now several amazing organizations specifically dedicated to educating and supporting MBC patients and their families. Start here:
Metastatic Breast Cancer Network
The MBCN is a wealth of information for the newly diagnosed patient and MBC veterans. You can find information on everything from interpreting a new diagnosis to detailed info on specific treatments. You can also browse current clinical trials looking for patients, read dozens of stories of MBC patients, and even get info on financial assistance for treatment.
Metavivor began as a patient support group in Annapolis, MD, and then grew into a major research-funding powerhouse. In 2018 alone, the group awarded more than $2.3 million in grants to researchers studying MBC. Metavivor is still dedicated to patient support, and facilitates dozens of peer-to-peer groups around the United States.
Metastatic Breast Cancer Project
This project offers patients an opportunity to participate in important MBC research right from their own home—by offering top researchers access to their medical records, providing a saliva sample for DNA analysis, and filling out a health questionnaire.