Top Resources for Bladder Cancer Supportby Malaika Hill Health Writer
When you're living with bladder cancer, you likely have many questions about the ways it can and will affect your life. No one should have to deal with these obstacles alone, and these organizations help people and families affected by bladder cancer with education, financial, and emotional support. These resources can be a guiding light through a challenging time.
American Cancer Society
Due to its mission to “free the world from cancer,” the American Cancer Society funds and conducts research related to bladder cancer. Its 24-7 helpline provides daily help for people looking for everything from a ride to treatment to hair-loss products. Visit the website for patient information materials as well as access to its three clinical journals.
Cancer Support Community
As a professionally led nonprofit network of cancer support worldwide, the Cancer Support Community is impacting the lives of those affected by bladder cancer with its cancer support helpline, cancer experience registry, “Frankly Speaking About Cancer” educational materials, and a radio show. It has also established a research and training institute as well as the Cancer Policy Institute.
Oncology social workers and cancer experts provide services to people fighting bladder cancer through CancerCare. Its financial and co-payment assistance programs help people with costs related to transportation, home care, childcare, and co-payments. It also offers counseling and support groups by phone, online, and in person as well as informative workshops.
Bladder Cancer Advocacy Network
The Bladder Cancer Advocacy Network (BCAN) is the only national advocacy group devoted to bladder cancer. Its mission is to increase public awareness and funding for research aimed at treating and ultimately curing bladder cancer. BCAN offers online and in-person community support groups, research grants, and educational tools for people battling bladder cancer. The network also raises awareness with an annual AmpUp! Walk/Run for Bladder Cancer.
Facebook Bladder Cancer Support Group
Facebook has a Bladder Cancer Support Group, where bladder cancer survivors share their stories and recommendations with people who are currently battling bladder cancer. Sharing your experience with others who face similar challenges can help you cope with your illness and be a form of moral support.
National Cancer Institute
The National Cancer Institute (NCI) is a government-funded agency for cancer research. The NCI publishes free information about bladder cancer research and educational information through cancer.gov. Here you can learn more about current research, treatment, causes, and prevention of bladder cancer.
National Library of Medicine
As the world’s largest medical library, the National Library of Medicine allows the public to access its stored books and journals on bladder cancer research through its website PubMed.gov. People dealing with bladder cancer can read reviews of clinical trials to find out what treatments are currently being studied and what treatments have been proven to be successful.
American Bladder Cancer Society
The American Bladder Cancer Society is a nonprofit organization that raises awareness of bladder cancer for the public as well as the medical community. Its goal is to promote “the concept of informed medical consumerism” by giving survivors of bladder cancer a platform. Survivors can raise the awareness needed to continue research that will hopefully lead to new treatment options and a better quality of life for others battling bladder cancer.
Patient Advocate Foundation Co-Pay Relief
The Patient Advocate Foundation Co-Pay Relief (CPR) helps people with bladder cancer by providing them with financial assistance to cover co-payments, co-insurance, and deductibles, specifically for people who are covered by Medicare, Medicaid, or military health benefits. People can apply online for assistance from the CPR program.