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Patient Narrative

The Latest

Vincent Nguyen and Starla Mathis

What It's Really Like to Live With HS

Living with a painful skin condition like hidradenitis suppurativa (HS) can feel isolating and scary. These HS influencers are breaking the silence about this misunderstood chronic illness.

Female doctor and patient discussing paperwork in clinic waiting room

Why Minorities Don't Participate in Psoriasis Studies

Persons of color have unique psoriasis needs. If they are not accessed in clinical trials, then we will continue to be at the short end of finding a successful treatment for our diseases. Learn more.

Jang Jaswal

A Gift of the Heart

After suffering several major heart attacks, a transplant was Jang Jaswal's last hope. After just three months on the list, he received his new heart—and his life changed in ways he never could have imagined.

Young woman lying down holding her stomach in pain.

What I Wish I’d Known Before Having Surgery for Endometriosis

“In 2013, I had the first of three laparoscopic surgeries for endometriosis. Had I known then what I know now, I could have avoided at least one of those surgeries.”

macro shot of hazel eye

What It's Really Like to Live With Wet AMD

Advanced macular degeneration is "no cup of tea," but it's not the end of everything either. Three patients get real about living with vision loss.

happy woman from behind with arms in the air

Highs and Lows: My Best and Worst Genital Herpes Moments

"What I once viewed as a near-death sentence to my love life and identity transformed into a sense of purpose that still guides me today."

Woman talking to a therapist about her genital herpes diagnosis.

How to Take Care of Your Mental Health After a Herpes Diagnosis

A genital herpes diagnosis can lead to feelings of depression and anxiety — among other struggles. Here’s how to combat the stigma and take care of your mental health.

Photo of Lene Andersen

A Very Personal Take on RA

The world isn't geared toward the chronically ill. Instead, we have to carve out our place. And after five decades of living with RA, our new columnist Lene Andersen has some things to say about that.

Jennifer Digmann

Newly Diagnosed with SPMS: "It's Just Two New Words"

Writer Jennifer Digmann gives her younger self (and you!) a pep talk immediately following a secondary progressive multiple sclerosis diagnosis.

Dionna Koval enjoys the view from a pedestrian bridge

Moving Forward with Metastatic Breast Cancer

Get tips for facing the future with metastatic breast cancer, including self-compassion, education, advocacy, and connecting with your support network.