"What I Want People to Know About MS"
Forget whatever preconceived ideas you have what it's like to live with MS. Here's what patients really want you to know about multiple sclerosis.
Nafisa: What I will want people to know about having MS is how unpredictable it is. Brooke: But until I need help, I don't need it offered all the time. Kim: It's hard to find a balance between your life and your life with MS. Rafe: You're probably going to be OK. You really are. Kim: It took me honestly, probably until my eighth or ninth year to accept I have multiple sclerosis and I might need help and it's okay to ask for help. Brooke: I wish that my friends knew that I really am okay, until I tell you I'm not OK. I can still use my body, so I'm lucky. And there are people that can't so maybe help them first. Daria: It's always a oh, my god, I'm so sorry. Like condolences almost. I'm just like, you can show me love. Like support me. Come out to these MS walks, like talk to me, still be my friend. Like, they just assume like it's a death sentence and it's not. Crystal: Everyone has something, you know, that they're dealing with. Nafisa: But with MS, it's like your bad days are really bad. Rafe: It can be really hard. I sat in the hospital room unsure of what's going to happen. Terrified. Like head in my hands. Twenty-six years old. My doctor comes up to me. Put their hand on my shoulder. Are you Mr. Karen? Yes. She goes, my name is Dr. Costner. I'm gonna be your doctor. You will be okay.