Patients Get Real About Working With MS
Will you be able to keep your job? Will you want to? A few people living with multiple sclerosis share their stories.
After being diagnosed with MS, many people worry about working and their jobs. Young adults talk about the effect MS has had on their careers.
Rafe: I don't think MS has impacted my ability to be successful at work. Unfortunately, I think I will work till I drop. Kim: I struggle with writing, so I would write and I guess the charts weren't neat enough. Kristine: When you're not feeling that great with how your MS manifests, it is a bit of a challenge. Karen: How to get creative with work? OK. I can't have a steady lunch break at 12. Then I'm going to prepare snacks for the day, so I can have a clear-thinking brain. Kristine: I needed that extra 30 minutes in my morning. Instead of getting in at nine, coming in half past nine, because I mentally was just not prepared to get in and start my day. I needed that extra cushion. Kim: When I was diagnosed, I just got a job teaching special education. It almost made teaching with MS, not easier, but more enjoyable because they were having their own issues. They were having mobility issues. So if I tripped or if I, you know, we can all just laugh about it. Rafe: I was in a hospital getting an infusion one day. There was an older gentleman sitting next to me who had just been diagnosed. He said, "How am I gonna help my family?" He was sobbing, crying. Older gentlemen. "How can I help my family?" "I can never work again. I can never do anything again." He thought his life was over. And I just talked to him. I said, "I think you can." "I've been diagnosed for six months, I'm here." "I go to work. It's not like it was, but I can do it." Kristine: I was able and fortunate to have some great people around me to really understand if there were conditions that didn't allow me to be physically there. I was still available to them, remotely. Karen: Now I choose to go to work with, I get to go to work. I don't have to go to work. I get to go to work. And I'm thankful for that.